In hospital rooms across the country, doctors, nurses, patients, and their families grapple with questions of life and death. Recently, they have been joined at the bedside by a new group of professional experts, bioethicists, whose presence raises a host of urgent questions. How has bioethics evolved into a legitimate specialty? When is such expertise necessary? How do bioethicists make their decisions? And whose interests do they serve?
Renowned sociologist Charles L. Bosk has been observing medical care for thirty-five years. In What Would You Do? he brings his extensive experience to bear on these questions while reflecting on the ethical dilemmas that his own ethnographic research among surgeons and genetic counselors has provoked. Bosk considers whether the consent given to ethnographers by their subjects can ever be fully voluntary and informed. He questions whether promises of confidentiality and anonymity can or should be made. And he wonders if social scientists overestimate the benefits of their work while downplaying the risks.
Vital for practitioners of both the newly prominent field of bioethics and the long-established craft of ethnography, What Would You Do? will also engross anyone concerned with how our society addresses difficult health care issues.
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Charles L. Bosk is professor of sociology at the University of Pennsylvania and the author ofForgive and Remember: Managing Medical Failure and All God’s Mistakes: Genetic Counseling in a Pediatric Hospital, both published by the University of Chicago Press.
“Charles Bosk provides in these pages a rich and rigorous account of the ways in which medical ethics, ethnography, and social science illuminate the human condition. He is the finest ethnographer of his generation, and he offers to future generations a standard of ethnographic practice and reflection that is unrivaled in its appreciation of the nuances and complexities of making sense of people’s lives.”
(Jonathan B. Imber, Wellesley College)“This is a brilliant book: astutely observed and elegantly written. Charles Bosk is the Erving Goffman of bioethics. He sees things the rest of us overlook.”--Carl Elliott, University of Minnesota
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