Raising Henry: A Memoir of Motherhood, Disability, and Discovery

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9780300180008: Raising Henry: A Memoir of Motherhood, Disability, and Discovery
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Rachel Adams’s life had always gone according to plan. She had an adoring husband, a beautiful two-year-old son, a sunny Manhattan apartment, and a position as a tenured professor at Columbia University. Everything changed with the birth of her second child, Henry. Just minutes after he was born, doctors told her that Henry had Down syndrome, and she knew that her life would never be the same.   In this honest, self-critical, and surprisingly funny book, Adams chronicles the first three years of Henry’s life and her own transformative experience of unexpectedly becoming the mother of a disabled child. A highly personal story of one family’s encounter with disability, Raising Henry is also an insightful exploration of today’s knotty terrain of social prejudice, disability policy, genetics, prenatal testing, medical training, and inclusive education. Adams untangles the contradictions of living in a society that is more enlightened and supportive of people with disabilities than ever before, yet is racing to perfect prenatal tests to prevent children like Henry from being born. Her book is gripping, beautifully written, and nearly impossible to put down. Once read, her family’s story is impossible to forget.

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From the Author:

A conversation with Rachel Adams

Q: What motivated you to write Raising Henry?

A: I’m a literary critic by training, and when my son Henry was born, I immediately turned to literature to try to understand my circumstances. I was dismayed by the lack of reliable, informative reading material about raising a child with Down syndrome, as well as the quantity of misinformation I found in mainstream pregnancy guides and child-rearing books. I saw the need for a story told from a mother’s perspective.

Q: Can you tell us some positive things you have discovered or experienced as the mother of a disabled child?

A: The best lesson I’ve learned from Henry is that the world is full of people who have devoted their lives and careers to helping others. I've seen my share of predictable ignorance and prejudice, but I was gratified by the more unexpected discovery of people with a genuine commitment to the rights and well-being of individuals with intellectual disabilities. My list includes doctors and other health care professionals, social workers, teachers, therapists, service coordinators, caregivers, and many, many others who have given their time and energy to helping Henry develop to his full potential and securing the happiness and health of our family.

Q: What changes do you hope to see in the medical establishment and educational system with regard to treatment and services offered for people with disabilities?

A: I would like to see doctors receive better training to help prospective parents make decisions about what it might mean to have a person with a disability in the family. And I look forward to educators learning more about how to enable students with Down syndrome to develop to their full potential.

About the Author:

Rachel Adams is professor of English and American studies at Columbia University, where she is also director of the Future of Disability Studies Project. She is the author of Sideshow U.S.A.: Freaks and the American Cultural Imagination. Adams lives with her husband and two sons in New York City.

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9780300198911: Raising Henry: A Memoir of Motherhood, Disability, and Discovery

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ISBN 10:  0300198914 ISBN 13:  9780300198911
Publisher: Yale University Press, 2014
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Book Description Yale University Press, United States, 2013. Hardback. Condition: New. Language: English. Brand new Book. Rachel Adams's life had always gone according to plan. She had an adoring husband, a beautiful two-year-old son, a sunny Manhattan apartment, and a position as a tenured professor at Columbia University. Everything changed with the birth of her second child, Henry. Just minutes after he was born, doctors told her that Henry had Down syndrome, and she knew that her life would never be the same. In this honest, self-critical, and surprisingly funny book, Adams chronicles the first three years of Henry's life and her own transformative experience of unexpectedly becoming the mother of a disabled child. A highly personal story of one family's encounter with disability, Raising Henry is also an insightful exploration of today's knotty terrain of social prejudice, disability policy, genetics, prenatal testing, medical training, and inclusive education. Adams untangles the contradictions of living in a society that is more enlightened and supportive of people with disabilities than ever before, yet is racing to perfect prenatal tests to prevent children like Henry from being born. Her book is gripping, beautifully written, and nearly impossible to put down.Once read, her family's story is impossible to forget. Seller Inventory # AAH9780300180008

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Book Description Yale University Press, United States, 2013. Hardback. Condition: New. Language: English. Brand new Book. Rachel Adams's life had always gone according to plan. She had an adoring husband, a beautiful two-year-old son, a sunny Manhattan apartment, and a position as a tenured professor at Columbia University. Everything changed with the birth of her second child, Henry. Just minutes after he was born, doctors told her that Henry had Down syndrome, and she knew that her life would never be the same. In this honest, self-critical, and surprisingly funny book, Adams chronicles the first three years of Henry's life and her own transformative experience of unexpectedly becoming the mother of a disabled child. A highly personal story of one family's encounter with disability, Raising Henry is also an insightful exploration of today's knotty terrain of social prejudice, disability policy, genetics, prenatal testing, medical training, and inclusive education. Adams untangles the contradictions of living in a society that is more enlightened and supportive of people with disabilities than ever before, yet is racing to perfect prenatal tests to prevent children like Henry from being born. Her book is gripping, beautifully written, and nearly impossible to put down. Once read, her family's story is impossible to forget. Seller Inventory # AAH9780300180008

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Book Description Yale University Press, United States, 2013. Hardback. Condition: New. Language: English. Brand new Book. Rachel Adams's life had always gone according to plan. She had an adoring husband, a beautiful two-year-old son, a sunny Manhattan apartment, and a position as a tenured professor at Columbia University. Everything changed with the birth of her second child, Henry. Just minutes after he was born, doctors told her that Henry had Down syndrome, and she knew that her life would never be the same. In this honest, self-critical, and surprisingly funny book, Adams chronicles the first three years of Henry's life and her own transformative experience of unexpectedly becoming the mother of a disabled child. A highly personal story of one family's encounter with disability, Raising Henry is also an insightful exploration of today's knotty terrain of social prejudice, disability policy, genetics, prenatal testing, medical training, and inclusive education. Adams untangles the contradictions of living in a society that is more enlightened and supportive of people with disabilities than ever before, yet is racing to perfect prenatal tests to prevent children like Henry from being born. Her book is gripping, beautifully written, and nearly impossible to put down. Once read, her family's story is impossible to forget. Seller Inventory # BTE9780300180008

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