A Face for Picasso: Coming of Age with Crouzon Syndrome - Hardcover

Henley, Ariel

Hardcover

ISBN 10: 0374314071 ISBN 13: 9780374314071

Publisher: Farrar, Straus and Giroux (BYR), 2021

Synopsis

A Schneider Family Book Award Honor Book for Teens

"Raw and unflinching . . . A must-read!" --Marieke Nijkamp, #1 New York Times-bestselling author of This Is Where It Ends

"[It] cuts to the heart of our bogus ideas of beauty." –Scott Westerfeld, #1 New York Times-bestselling author of Uglies


I am ugly. There's a mathematical equation to prove it.

At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome -- a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive it.

Growing up, Ariel and her sister endured numerous appearance-altering procedures. Surgeons would break the bones in their heads and faces to make room for their growing organs. While the physical aspect of their condition was painful, it was nothing compared to the emotional toll of navigating life with a facial disfigurement.

Ariel explores beauty and identity in her young-adult memoir about resilience, sisterhood, and the strength it takes to put your life, and yourself, back together time and time again.

About this title

About the Author

Ariel Henley is a writer from Northern California with a B.A. in English and Political Science from the University of Vermont. She is passionate about writing as a form of activism, and hopes to use her story to promote mainstream inclusion for individuals with physical differences. Her work has appeared in The New York Times, The Atlantic, The Washington Post, and Narratively. A Face for Picasso is her debut novel.

Reviews

Gr 8 Up-Henley weaves a memoir of a journey to finding one's identity, while dealing with a life of raw physical and emotional pain. Born with Crouzon syndrome, a condition where the bones of the head fuse prematurely, Ariel and her twin sister, Zan, grew up under an umbrella of burden: the perpetual hostility of a society with strict beauty standards and the endless stream of life-saving facial surgeries. Told in segments, this memoir moves readers through Ariel's early childhood into the overwhelming middle school experience, which is marked by trauma but also resiliency, and then into her late-teen early college years, where she finally allows herself to break from the mold of external influence. Henley effortlessly explores the immense societal importance of striving toward unobtainable beauty standards and the authentic consequences for those who seemingly fall short of it. The book also touches on eating disorders, post-traumatic stress disorders, and anger issues. With a perceptive analysis of the way beauty standards shape the most basic social values and a fascinating coming-of-age story told from a unique perspective, Henley's memoir is not to be missed. VERDICT Captivating, unflinching, and insightful, this title is highly recommend.-Jessica Manafi Brits α(c) Copyright 2011. Library Journals LLC, a wholly owned subsidiary of Media Source, Inc. No redistribution permitted.

Edition details

• Publisher: Farrar, Straus and Giroux (BYR)
• Publication date: 2021
• Language: English
• ISBN 10: 0374314071
• ISBN 13: 9780374314071
• Binding: Hardcover
• Edition number: 1
• Number of pages: 400