The Official Parent's Sourcebook on Childhood Hodgkin's Disease: A Revised and Updated Directory for the Internet Age

 
9780597833465: The Official Parent's Sourcebook on Childhood Hodgkin's Disease: A Revised and Updated Directory for the Internet Age

This sourcebook has been created for parents who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells parents where and how to look for information covering virtually all topics related to childhood hodgkin's disease, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on childhood hodgkin's disease. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Childhood Hodgkin's Disease: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Childhood Hodgkin's Disease; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Childhood Hodgkin's Disease; Chapter 5. Books on Childhood Hodgkin's Disease; Chapter 6. Multimedia on Childhood Hodgkin's Disease; Chapter 7. Physician Guidelines and Databases; PART III. APPENDICES; Appendix A. Researching Your Child's Medications; Appendix B. Researching Alternative Medicine; Appendix C. Researching Nutrition; Appendix D. Finding Medical Libraries; Appendix E. Your Child's Rights and Insurance; Appendix F. Talking with Your Child about Cancer; ONLINE GLOSSARIES; CHILDHOOD HODGKIN'S DISEASE GLOSSARY; INDEX. Related topics include: Cancer Hodgkin's lymphoma, child Lymphoma Hodgkin's, child Malignant lymphoma, Hodgkin Disease, Hodgkin's disease, Hodgkin's Lymphoma, Malignant lymphoma.

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From the Publisher:

This is a "must have" reference book for patients, parents, caregivers, and libraries with medical collections. This sourcebook is organized into three parts. Part I explores basic techniques to researching childhood hodgkin's disease (e.g. finding guidelines on diagnosis, treatments, and prognosis), followed by a number of topics, including information on how to get in touch with organizations, associations, or other patient networks dedicated to childhood hodgkin's disease. It also gives you sources of information that can help you find a doctor in your local area specializing in treating childhood hodgkin's disease. Collectively, the material presented in Part I is a complete primer on basic research topics for patients with childhood hodgkin's disease. Part II moves on to advanced research dedicated to childhood hodgkin's disease. Part II is intended for those willing to invest many hours of hard work and study. It is here that we direct you to the latest scientific and applied research on childhood hodgkin's disease. When possible, contact names, links via the Internet, and summaries are provided. In general, every attempt is made to recommend "free-to-use" options. Part III provides appendices of useful background reading for all patients with childhood hodgkin's disease or related disorders. The appendices are dedicated to more pragmatic issues faced by many patients with childhood hodgkin's disease. Accessing materials via medical libraries may be the only option for some readers, so a guide is provided for finding local medical libraries which are open to the public. Part III, therefore, focuses on advice that goes beyond the biological and scientific issues facing patients with childhood hodgkin's disease.

Excerpt. Reprinted by permission. All rights reserved.:

Though many physicians and public officials had thought that the emergence of the Internet would do much to assist patients in obtaining reliable information, in March 2001 the National Institutes of Health issued the following warning: "The number of Web sites offering" health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading." Since the late 1990s, physicians have seen a general increase in patient Internet usage rates. Patients frequently enter their doctor's offices with printed Web pages of home remedies in the guise of latest medical research. This scenario is so common that doctors often spend more time dispelling misleading information than guiding patients through sound therapies. ... This book has been created for patients who have decided to make education and research an integral part of the treatment process. ... While this sourcebook covers childhood hodgkin's disease, your doctor, research publications, and specialists may refer to your condition using a variety of terms. Therefore, you should understand that childhood hodgkin's disease is often considered a synonym or a condition closely related to the following: Cancer Hodgkin's lymphoma; child Lymphoma Hodgkin's; child Malignant lymphoma; Hodgkin Disease; Hodgkin's disease; Hodgkin's Lymphoma.

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