Ethical Issues in Governing Biobanks: Global Perspectives

3 avg rating
( 1 ratings by Goodreads )
 
9780754672555: Ethical Issues in Governing Biobanks: Global Perspectives

Population genomics research drawing on genetic databases has expanded rapidly, with some of this information being combined in 'biobanks'. Managing this information in an appropriate way is a highly complex ethical issue in the health policy arena. This book combines theoretical and empirical research to analyze the areas of conflict and consensus in the regulatory and ethical frameworks that have been developed to govern biobanks. Ethicists from the Department of Ethics, Trade, Human Rights and Health Law (ETH) of the World Health Organization, the Institute of Biomedical Ethics of Geneva University and the Institute of Biomedical Ethics of the University of Zurich, with the support of the Geneva International Academic Network (GIAN), examine the conditions under which genetic databases can be established, kept, and made use of in an ethically acceptable way. In addition to a comprehensive review of the scientific literature and a comparative analysis of existing normative frameworks, they present the results of in-depth interviews with experts around the world concerning the most unresolved and controversial issues. The results of that study, combined with their normative analysis, leads to recommendations for a better international framework.

"synopsis" may belong to another edition of this title.

About the Author:

Bernice Elger is Professor, Institut Universitaire Romand de Medecine Legale Universite de Geneve, and Internist at the University Hospital of Geneva. Nikola Biller-Andorno is Professor of Biomedical Ethics, University of Zurich. She is an advisor to the World Health Organization and Associate Editor of the Journal of Medical Ethics. Alex Mauron is Professor of Bioethics, Faculty of Medicine, University of Geneva. He is a member of the Swiss Academy of Medical Sciences, the Swiss National Advisory Commission on Biomedical Ethics, and the Swiss Science and Technology Council. Alex Capron is a University Professor at the University of Southern California, where he holds the Scott H. Bice Chair in Healthcare Law, Policy and Ethics. A member of the Institute of Medicine (National Academy of Sciences) and the American Law Institute, he was the first Director of Ethics, Trade, Human Rights and Health Law at the World Health Organization.

Review:

'This volume is a "must-read" for anyone interested in biobanks, bringing together both theoretical perspectives and empirical data to shed clear light on the sometimes confusing issues of terminology, and identifying where consensus exists regarding ethics and regulation in this important area of scientific development.' Ruth Chadwick, Cardiff University, UK 'Ethical Issues in Governing Biobanks provides valuable evidence of widespread academic concern about ethical issues associated with biobanks.' Journal of the American Medical Association '[This] book provides a comprehensive overview of unresolved ethical disputes in the literature and of conflicting national and international guidelines. Even more useful, much of the book is based on an international qualitative study of the ethical opinions of bioethicists, biobank managers, medical researchers and clinicians.' Monash Bioethics Review 'The strength of the book is the rich and detailed exploration of the moral reasoning concerning a large number of controversial issues surrounding the development of new biobanks and the maintenance of existing biobanks... The authors have managed to present their material in a very lively, compelling fashion... I strongly recommend this book to anyone who is interested in the topic of biobanks and who would like to understand more of the complicated discussions concerning them.' Genomics, Society and Policy

"About this title" may belong to another edition of this title.

Buy New View Book
List Price: US$ 149.95
US$ 128.28

Convert Currency

Shipping: FREE
From United Kingdom to U.S.A.

Destination, Rates & Speeds

Add to Basket

Top Search Results from the AbeBooks Marketplace

1.

Nikola Biller-Andorno, Alexander M. Capron
Published by Taylor Francis Ltd, United Kingdom (2008)
ISBN 10: 0754672557 ISBN 13: 9780754672555
New Hardcover Quantity Available: 10
Seller:
The Book Depository
(London, United Kingdom)
Rating
[?]

Book Description Taylor Francis Ltd, United Kingdom, 2008. Hardback. Book Condition: New. Language: English . Brand New Book. Population genomics research drawing on genetic databases has expanded rapidly, with some of this information being combined in biobanks . Managing this information in an appropriate way is a highly complex ethical issue in the health policy arena. This book combines theoretical and empirical research to analyze the areas of conflict and consensus in the regulatory and ethical frameworks that have been developed to govern biobanks. Ethicists from the Department of Ethics, Trade, Human Rights and Health Law (ETH) of the World Health Organization, the Institute of Biomedical Ethics of Geneva University and the Institute of Biomedical Ethics of the University of Zurich, with the support of the Geneva International Academic Network (GIAN), examine the conditions under which genetic databases can be established, kept, and made use of in an ethically acceptable way. In addition to a comprehensive review of the scientific literature and a comparative analysis of existing normative frameworks, they present the results of in-depth interviews with experts around the world concerning the most unresolved and controversial issues. The results of that study, combined with their normative analysis, leads to recommendations for a better international framework. Bookseller Inventory # AA69780754672555

More Information About This Seller | Ask Bookseller a Question

Buy New
US$ 128.28
Convert Currency

Add to Basket

Shipping: FREE
From United Kingdom to U.S.A.
Destination, Rates & Speeds

2.

Bernice Elger
Published by Ashgate 2008-12-17, Aldershot (2008)
ISBN 10: 0754672557 ISBN 13: 9780754672555
New Hardcover Quantity Available: > 20
Seller:
Blackwell's
(Oxford, OX, United Kingdom)
Rating
[?]

Book Description Ashgate 2008-12-17, Aldershot, 2008. hardback. Book Condition: New. Bookseller Inventory # 9780754672555

More Information About This Seller | Ask Bookseller a Question

Buy New
US$ 127.92
Convert Currency

Add to Basket

Shipping: US$ 7.91
From United Kingdom to U.S.A.
Destination, Rates & Speeds

3.

Nikola Biller-Andorno, Alexander M. Capron
Published by Taylor Francis Ltd, United Kingdom (2008)
ISBN 10: 0754672557 ISBN 13: 9780754672555
New Hardcover Quantity Available: 10
Seller:
The Book Depository US
(London, United Kingdom)
Rating
[?]

Book Description Taylor Francis Ltd, United Kingdom, 2008. Hardback. Book Condition: New. Language: English . Brand New Book. Population genomics research drawing on genetic databases has expanded rapidly, with some of this information being combined in biobanks . Managing this information in an appropriate way is a highly complex ethical issue in the health policy arena. This book combines theoretical and empirical research to analyze the areas of conflict and consensus in the regulatory and ethical frameworks that have been developed to govern biobanks. Ethicists from the Department of Ethics, Trade, Human Rights and Health Law (ETH) of the World Health Organization, the Institute of Biomedical Ethics of Geneva University and the Institute of Biomedical Ethics of the University of Zurich, with the support of the Geneva International Academic Network (GIAN), examine the conditions under which genetic databases can be established, kept, and made use of in an ethically acceptable way. In addition to a comprehensive review of the scientific literature and a comparative analysis of existing normative frameworks, they present the results of in-depth interviews with experts around the world concerning the most unresolved and controversial issues. The results of that study, combined with their normative analysis, leads to recommendations for a better international framework. Bookseller Inventory # AA69780754672555

More Information About This Seller | Ask Bookseller a Question

Buy New
US$ 136.05
Convert Currency

Add to Basket

Shipping: FREE
From United Kingdom to U.S.A.
Destination, Rates & Speeds

4.

Biller-Andorno, Nikola
Published by Routledge (2016)
ISBN 10: 0754672557 ISBN 13: 9780754672555
New Paperback Quantity Available: 1
Print on Demand
Seller:
Ria Christie Collections
(Uxbridge, United Kingdom)
Rating
[?]

Book Description Routledge, 2016. Paperback. Book Condition: New. PRINT ON DEMAND Book; New; Publication Year 2016; Not Signed; Fast Shipping from the UK. No. book. Bookseller Inventory # ria9780754672555_lsuk

More Information About This Seller | Ask Bookseller a Question

Buy New
US$ 140.23
Convert Currency

Add to Basket

Shipping: US$ 5.10
From United Kingdom to U.S.A.
Destination, Rates & Speeds

5.

Biller-Andorno, Nikola
ISBN 10: 0754672557 ISBN 13: 9780754672555
New Quantity Available: 9
Seller:
Paperbackshop-US
(Wood Dale, IL, U.S.A.)
Rating
[?]

Book Description 2008. HRD. Book Condition: New. New Book. Shipped from US within 10 to 14 business days. Established seller since 2000. Bookseller Inventory # VT-9780754672555

More Information About This Seller | Ask Bookseller a Question

Buy New
US$ 144.44
Convert Currency

Add to Basket

Shipping: US$ 3.99
Within U.S.A.
Destination, Rates & Speeds

6.

Elger Bernice
Published by Ashgate Publishing Company
ISBN 10: 0754672557 ISBN 13: 9780754672555
New Quantity Available: 3
Seller:
Majestic Books
(London, ,, United Kingdom)
Rating
[?]

Book Description Ashgate Publishing Company. Book Condition: New. pp. 268. Bookseller Inventory # 7391396

More Information About This Seller | Ask Bookseller a Question

Buy New
US$ 151.24
Convert Currency

Add to Basket

Shipping: US$ 7.25
From United Kingdom to U.S.A.
Destination, Rates & Speeds

7.

Biller-Andorno, Nikola
Published by Routledge (2008)
ISBN 10: 0754672557 ISBN 13: 9780754672555
New Quantity Available: > 20
Print on Demand
Seller:
Books2Anywhere
(Fairford, GLOS, United Kingdom)
Rating
[?]

Book Description Routledge, 2008. HRD. Book Condition: New. New Book. Delivered from our US warehouse in 10 to 14 business days. THIS BOOK IS PRINTED ON DEMAND.Established seller since 2000. Bookseller Inventory # IP-9780754672555

More Information About This Seller | Ask Bookseller a Question

Buy New
US$ 154.73
Convert Currency

Add to Basket

Shipping: US$ 11.87
From United Kingdom to U.S.A.
Destination, Rates & Speeds

8.

Nikola Biller-Andorno, Alexander M. Capron
Published by Taylor Francis Ltd, United Kingdom (2008)
ISBN 10: 0754672557 ISBN 13: 9780754672555
New Hardcover Quantity Available: 1
Seller:
Book Depository hard to find
(London, United Kingdom)
Rating
[?]

Book Description Taylor Francis Ltd, United Kingdom, 2008. Hardback. Book Condition: New. Language: English . This book usually ship within 10-15 business days and we will endeavor to dispatch orders quicker than this where possible. Brand New Book. Population genomics research drawing on genetic databases has expanded rapidly, with some of this information being combined in biobanks . Managing this information in an appropriate way is a highly complex ethical issue in the health policy arena. This book combines theoretical and empirical research to analyze the areas of conflict and consensus in the regulatory and ethical frameworks that have been developed to govern biobanks. Ethicists from the Department of Ethics, Trade, Human Rights and Health Law (ETH) of the World Health Organization, the Institute of Biomedical Ethics of Geneva University and the Institute of Biomedical Ethics of the University of Zurich, with the support of the Geneva International Academic Network (GIAN), examine the conditions under which genetic databases can be established, kept, and made use of in an ethically acceptable way. In addition to a comprehensive review of the scientific literature and a comparative analysis of existing normative frameworks, they present the results of in-depth interviews with experts around the world concerning the most unresolved and controversial issues. The results of that study, combined with their normative analysis, leads to recommendations for a better international framework. Bookseller Inventory # BTE9780754672555

More Information About This Seller | Ask Bookseller a Question

Buy New
US$ 171.98
Convert Currency

Add to Basket

Shipping: FREE
From United Kingdom to U.S.A.
Destination, Rates & Speeds

9.

BILLER-ANDORNO, NIKOLA; CAPRON, ALEXANDER M.
Published by Routledge (2008)
ISBN 10: 0754672557 ISBN 13: 9780754672555
New Hardcover Quantity Available: 1
Seller:
Herb Tandree Philosophy Books
(Stroud, GLOS, United Kingdom)
Rating
[?]

Book Description Routledge, 2008. Hardback. Book Condition: NEW. 9780754672555 This listing is a new book, a title currently in-print which we order directly and immediately from the publisher. Bookseller Inventory # HTANDREE01021133

More Information About This Seller | Ask Bookseller a Question

Buy New
US$ 164.40
Convert Currency

Add to Basket

Shipping: US$ 10.55
From United Kingdom to U.S.A.
Destination, Rates & Speeds

10.

Elger, Bernice (Editor)/ Biller-Andorno, Nikola (Editor)/ Mauron, Alexandre (Editor)/ Capron, Alexander Morgan (Editor)
Published by Ashgate Pub Co (2008)
ISBN 10: 0754672557 ISBN 13: 9780754672555
New Hardcover Quantity Available: 2
Seller:
Revaluation Books
(Exeter, United Kingdom)
Rating
[?]

Book Description Ashgate Pub Co, 2008. Hardcover. Book Condition: Brand New. 286 pages. 9.53x6.38x0.87 inches. In Stock. Bookseller Inventory # __0754672557

More Information About This Seller | Ask Bookseller a Question

Buy New
US$ 175.96
Convert Currency

Add to Basket

Shipping: US$ 7.91
From United Kingdom to U.S.A.
Destination, Rates & Speeds

There are more copies of this book

View all search results for this book