Living Well with Lymphedema

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9780976480617: Living Well with Lymphedema

Lymphedema is swelling caused by the abnormal accumulation of lymphatic fluid in the skin. Lymphedema can be caused by burns, injury, surgery, radiation therapy, obesity, or circulatory problems. Many breast- and prostate-cancer survivors have, or risk developing, lymphedema. There is also an inherited form. If not treated, lymphedema can be painful and lead to life-threatening infections. This book will help you live well with lymphedema through treatment, self-management, and helpful tips for daily living. It will also help you understand how the lymphatic system works, how lymphedema is diagnosed, how to cope with the emotional challenges of lymphedema, how to find treatment, and deal with insurance issues. Living Well is for those with, or at risk for, lymphedema as well as healthcare professionals, caregivers, and friends and family.

Living Well With Lymphedema is the comprehensive resource for those with, or at risk of developing, lymphedema. This easy-to-read, generously illustrated, 280 page book contains the information necessary to understand what is lymphedema, what causes it, how it is treated, self-management steps to control your condition, practical suggestions on how to master the emotional challenges that accompany living with a chronic condition, plus an illustrated guide to understanding the lymphatic system.

LymphNotes.com, the highly respected lymphedema oriented website, provides insights into the needs and interests of hundreds of individuals with, at risk of, or caring for someone with lymphedema.

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From the Author:

From the preface:

The Epidemic No One Talks About
Now that cancer has become a chronic condition, we face a stealth epidemic of lymphedema among cancer survivors. Many physicians don’t recognize lymphedema and some deny that it happens—but there it is in all of its swollen glory. That is the gloomy side of the picture.

The bright side of the picture is that the situation is changing! Physicians and other healthcare providers are becoming more aware of lymphedema and promising research on lymphedema prevention and treatment is underway. Most importantly there is a growing—but still not large enough—pool of specialized therapists who treat lymphedema and improve the quality of life for their patients.

Another change for the better is that patients are taking a more active role in the management of their own healthcare. These patients ask questions and search for answers. They want to know! Many also support each other by swapping tips on what works, or doesn’t work, or just by listening through the tough times that come from living with a chronic condition.

Our goal is to provide practical information in a format that is easy-to-understand for people with lymphedema, friends and family, and healthcare professionals. We hope that we will be able to help you live well with lymphedema.

From the Inside Flap:

Advanced praise for Living Well With Lymphedema:

"This book is very well organized and thought out, providing enough detail, explanation, and practical insight to enable someone with lymphedema to live safely and well. I definitely recommend it to anyone with, or at risk for, lymphedema."
John Giusto, M.D.

"After two years of treatment with an outstanding therapist, I know a lot about my condition and my role in managing it. But I learned something new on every page of this book. It will be a wonderful reference for me as a periodic check of my self-management."
Dixie Lee Spiegel, Ph.D.

"This book is upbeat and positive while dealing with a condition that can be overwhelming."
Deborah G. Kelly, PT, MSEd, CLT-LANA, Associate Professor at the University of Kentucky and author of a textbook for lymphedema therapists

"The most comprehensive lymphedema book on the market. Wonderful for patients and those at risk. So many sources tell lymphedema patients what they can’t do. This book encourages us in what we can do! I absolutely loved the chapter on emotional challenges. Finally I feel that someone understands and then provides me with appropriate coping suggestions and alternatives. Thanks."
Tracy Novak, post mastectomy lymphedema patient and founder of the West Virginia Support Network

"This book is a resource I can enthusiastically recommend to my patients. The content is up-to-date, comprehensive, and well illustrated. It reinforces what I teach my patients and answers the questions they forget to ask."
Doris Laing, CLT-LANA

"What a gift these authors have given to anyone affected with lymphedema! One of the most thorough and informative books I have ever read."
Debbie Robinson, concerned family member

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