Childhood Leukemia (Patient Centered Guides)

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9781449380434: Childhood Leukemia (Patient Centered Guides)
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This most complete parent guide covers not only detailed and precise medical information about leukemia and the various treatment options, but also day-to-day practical advice on how to cope with procedures, hospitalization, family and friends, school, social and financial issues, communication, feelings, and, if therapy is not successful, the difficult issues of death and bereavement. Woven among the medical details and the practical advice are the voices of more than 150 parents and children who have lived with leukemia and its treatments. As many parents have already found, advice from "veteran" parents can be a lifeline.

Obtaining a basic understanding of topics such as medical terminology, common side effects of chemotherapy, and how to interpret blood counts can help improve quality of life for the whole family. Learning how to develop a partnership with your child's physician can vastly increase a family's peace of mind. Hearing parents describe their own emotional ups and downs, how they coped, and how they molded their family life around hospitalizations is a tremendous comfort. Just knowing that there are other kids on chemotherapy who refuse to eat anything but tacos or who have frequent rages makes one feel less alone.

Parents who read this book will encounter medical facts simply explained, advice to ease their daily life, and tools to be a strong advocate for their child. This fourth edition contains significant updates to the information on treatments (including tailoring treatments to children's individual genetic profiles), chemotherapy drugs, stem cell transplants, coping with side effects, and resources. It also contains a personal treatment summary and long-term follow-up guide for your child to keep as a permanent record.

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About the Author:

Nancy Keene is the author of several books on childhood cancer. Her 21-year-old daughter was diagnosed with high-risk leukemia at age 3. Nancy was the first chair of the patient advocacy committee of the Children's Oncology Group, a research organization of pediatric cancer specialists from hospitals across the United States, Canada, and Australia. She is a popular speaker at professional and family conferences on childhood cancer and medical communication.

Review:

"Keene has written a comprehensive handbook to serve as a road map for others, from diagnosis through treatment." —Library Journal, *starred* review and chosen for the prestigious Nursing Your Children's Health Collection

"This most complete parent guide available covers not only detailed and precise medical information about leukemia and the various treatment options from chemotherapy to bone marrow transplantation, but also day-to-day practical advice." —F. Leonard Johnson, M.D. Chief, Division of Pediatric Hematology/Oncology Oregon Health Sciences University

"What's compelling about Childhood Leukemia: A Guide for Families, Friends, and Caregivers is the amount of useful medical information and practical advice it contains.... As the mother of a two-time survivor of ALL-yes it can recur, in my daughter's case after a 14-year remission-I can vouch that the road to cure is bumpy, filled with life-threatening complications and requiring aggressive in-hospital care. Keene spells it all out.... A valuable resource to help parents and children regain their equilibrium after diagnosis and during the two to three years of treatment." —Patricia Dane Rogers, The Washington Post

"This wonderful book is an informative addition to the House library, and one we will recommend wholeheartedly. By providing this resource to the children and families staying here, you enable them to find a bit of hope and peace of mind in a time of great difficulty and confusion." —Peggy Enright, House Director, Boston Ronald McDonald House

"Of all the many kinds of help we had (and we had lots) Childhood Leukemia was the single best gift we received. It was the gift of knowledge, so we could ask intelligent questions about our daughter's care. It was the gift of security, allowing us to foresee much of what was coming, and giving us the tools we needed to cope. And it was the gift of hope, for we could see that many children do, indeed, get through this trying time, and come through the grueling treatment intact." —Kim Warren, parent of a child with leukemia (one of dozens of thank-you letters sent to the author)

"Faced with a diagnosis of a life threatening disease, parents of a newly diagnosed child with leukemia often struggle to understand the facts and explanations of the disease and treatment they face, while at the same time dealing with overwhelming feelings of fear, confusion and isolation. The great value of Nancy Keene's exceptional book is that it puts the facts and explanations into understandable terms while acknowledging and dealing with the emotional aspects as only parents who have had similar experience, can. This combination of science, clinical facts and humanism is a potent weapon for both new and seasoned parents who must travel this demanding path. It is also of enormous value to those of us who try to help parents understand and cope as our professional obligation." —Mark L. Greenberg, MD Professor of Paediatrics and Surgery, University of Toronto Senior Staff Oncologist, Hospital for Sick Children Chair, Paediatric Oncology Group of Ontario (POGO)

"Childhood Leukemia is the very best book on the subject that I have read, and I've read everything I could put my hands on. It is absolutely correct in the subject matter it covers and the approach. I wish someone had put a copy in my hands the day after the diagnosis. It literally will be a life-saving book." —Rebecca Laird, parent (one of dozens of thank-you letters sent to the author)

"This book is an invaluable reference for children, their family and their health care providers. It provides important information written in ways families can understand. Ms. Keene presents difficult and sometimes troubling information in a sensitive and balanced manner. I highly recommend it for patients, family members and health care providers." —Debra L. Friedman, MD Director, Division of Hematology-Oncology E. Bronson Ingram Chair in Pediatric Oncology Vanderbilt Children's Hospital

"Our 7-year-old daughter was diagnosed with ALL. We were immediately given a copy of your book by the hospital. Initially, we were reluctant to open it and face the information inside. However, once we decided to pull our heads from the sand, we have found Childhood Leukemia to be our absolute bible. Not only do we use it for general information, but we rely heavily on this book for reassurance in times of crisis (real or potential). I cannot imagine not having the information so close at hand and so well organized." —Jocelyn Hillman Mother of a leukemia survivor Board Member, Alex's Lemonade Stand Foundation

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Other Popular Editions of the Same Title

9781941089057: Childhood Leukemia: A Guide for Families, Friends & Caregivers (Childhood Cancer Guides)

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ISBN 10:  1941089054 ISBN 13:  9781941089057
Publisher: Childhood Cancer Guides, 2010
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9780596500153: Childhood Leukemia: A Guide for Families, Friends and Caregivers (3rd Edition)

Childh..., 2002
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9781565921917: Childhood Leukemia: A Guide for Families, Friends, and Caregivers (Patient Centered Guides)

O'..., 1997
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9781565926325: Childhood Leukemia: A Guide for Families, Friends & Caregivers (Patient Centered Guides)

Childh..., 1999
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