Amyotrophic Lateral Sclerosis

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9781458756152: Amyotrophic Lateral Sclerosis

ALS is not a curable disease, but it is a treatable one. Treatments are now available that can make a major difference in prolonging life and enhancing the quality of life for people with the disease, and there are treatments for many of the symptoms of ALS that can help ease its burden. Multidisciplinary teams in specialized ALS centers are providing top quality care and comprehensive rehabilitation for persons with ALS. In spite of the progressive nature of this disease and its clear tendency to shorten life, the momentum of research in this disease is expanding dramatically and numerous clinical trials are testing promising new therapies. Our understanding of the basic causes of ALS is expanding gradually. The substantial resources of patient advocacy groups such as the Amyotrophic Lateral Sclerosis Association and Muscular Dystrophy Association provide tremendous help and support for people with ALS and their families. Although the diagnosis of ALS can initially be devastating, the vast majority of people discovering new courage from within to battle this disease and live life with vigor and enthusiasm. The information in this book will prove useful to people with ALS and their families both in managing the disease and living within its limitations. ''

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Although there have been major advances in understanding the underlying pathology of Amyotrophic Lateral Sclerosis (ALS), for most patients the clinical outcome is invariably fatal. However, a great deal can be done by physicians and other health care professionals to treat the symptoms of ALS, to improve the patient's quality of life, and to help caregivers and families to cope with the disease. It is to these varied groups that this book is addressed. This comprehensive guide covers every aspect of the management of ALS. Beginning with discussions of classification and clinical features of the disease, its diagnosis, care of patients, therapeutic trials, and unorthodox treatments, major sections also deal with speech problems, physical therapy, nutrition, environmental adaptations, ventilatory care, nursing care, long term care and financial resources, and the role of support groups. Rounding out this comprehensive review are sections that deal with hospice care, life support systems, legal, ethical, psychosocial, and spiritual aspects of dealing with ALS, and the role of the national voluntary health agency in dealing with all aspects of the disease.

About the Author:

Robert G. Miller, MD - Dr. Robert G. Miller is Director of the Forbes Norris MDA/ALS Research Center at the California Pacific Medical Center in San Francisco; Clinical Professor of Neurology in the Department of Neurology at the University of California, San Francisco; Clinical Professor of Neurology and Neurological Sciences in the Department of Neurology at Stanford University Medical School; and Director of Neuromuscular Research and Chairman of the Department of Neurosciences at California Pacific Medical Center (CPMC) in San Francisco. He is the author of nearly 200 scientific articles on neuromuscular disease and ALS, and chairs the Medical Advisory Board of the ALS CARE program, a North American ALS patient database project designed to enhance the standard of care for people with ALS. / Deborah Gelinas , MD - Dr. Deborah Gelinas is the Clinical Director of the Forbes Norris MDA/ALS Research Center. She is the principal investigator for several ongoing clinical drug trials in ALS, sponsored by both federally funded agencies and pharmaceutical companies. She has received numerous awards throughout her career that include the Outstanding Physician Scientist Award of the California Pacific Medical Center and an Army Meritous Service Medal. / Patricia O'Connor , RN - Patricia O'Connor, RN graduated from the City College of New York with a Bachelor of Science in Nursing. She is the nurse case manager and coordinator of the Multidisciplinary Clinic at the Forbes Norris MDA/ALS Research Center in San Francisco, CA. Ms. O'Connor has extensive experience in the fields of rehabilitation and case management and has specialized in the care of ALS patients since 1997.

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Book Description ReadHowYouWant.com Ltd, Canada, 2010. Paperback. Book Condition: New. [Large Print]. Language: English . Brand New Book ***** Print on Demand *****. ALS is not a curable disease, but it is a treatable one. Treatments are now available that can make a major difference in prolonging life and enhancing the quality of life for people with the disease, and there are treatments for many of the symptoms of ALS that can help ease its burden. Multidisciplinary teams in specialized ALS centers are providing top quality care and comprehensive rehabilitation for persons with ALS. In spite of the progressive nature of this disease and its clear tendency to shorten life, the momentum of research in this disease is expanding dramatically and numerous clinical trials are testing promising new therapies. Our understanding of the basic causes of ALS is expanding gradually. The substantial resources of patient advocacy groups such as the Amyotrophic Lateral Sclerosis Association and Muscular Dystrophy Association provide tremendous help and support for people with ALS and their families. Although the diagnosis of ALS can initially be devastating, the vast majority of people discovering new courage from within to battle this disease and live life with vigor and enthusiasm. The information in this book will prove useful to people with ALS and their families both in managing the disease and living within its limitations. Bookseller Inventory # APC9781458756152

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Book Description ReadHowYouWant. Paperback. Book Condition: New. Paperback. 388 pages. Dimensions: 10.0in. x 7.8in. x 0.9in.ALS is not a curable disease, but it is a treatable one. Treatments are now available that can make a major difference in prolonging life and enhancing the quality of life for people with the disease, and there are treatments for many of the symptoms of ALS that can help ease its burden. Multidisciplinary teams in specialized ALS centers are providing top quality care and comprehensive rehabilitation for persons with ALS. In spite of the progressive nature of this disease and its clear tendency to shorten life, the momentum of research in this disease is expanding dramatically and numerous clinical trials are testing promising new therapies. Our understanding of the basic causes of ALS is expanding gradually. The substantial resources of patient advocacy groups such as the Amyotrophic Lateral Sclerosis Association and Muscular Dystrophy Association provide tremendous help and support for people with ALS and their families. Although the diagnosis of ALS can initially be devastating, the vast majority of people discovering new courage from within to battle this disease and live life with vigor and enthusiasm. The information in this book will prove useful to people with ALS and their families both in managing the disease and living within its limitations. This item ships from multiple locations. Your book may arrive from Roseburg,OR, La Vergne,TN. Paperback. Bookseller Inventory # 9781458756152

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Book Description ReadHowYouWant.com Ltd, Canada, 2010. Paperback. Book Condition: New. [Large Print]. Language: English . Brand New Book ***** Print on Demand *****.ALS is not a curable disease, but it is a treatable one. Treatments are now available that can make a major difference in prolonging life and enhancing the quality of life for people with the disease, and there are treatments for many of the symptoms of ALS that can help ease its burden. Multidisciplinary teams in specialized ALS centers are providing top quality care and comprehensive rehabilitation for persons with ALS. In spite of the progressive nature of this disease and its clear tendency to shorten life, the momentum of research in this disease is expanding dramatically and numerous clinical trials are testing promising new therapies. Our understanding of the basic causes of ALS is expanding gradually. The substantial resources of patient advocacy groups such as the Amyotrophic Lateral Sclerosis Association and Muscular Dystrophy Association provide tremendous help and support for people with ALS and their families. Although the diagnosis of ALS can initially be devastating, the vast majority of people discovering new courage from within to battle this disease and live life with vigor and enthusiasm. The information in this book will prove useful to people with ALS and their families both in managing the disease and living within its limitations. Bookseller Inventory # APC9781458756152

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