Joanna, God's Special Child: Joanna's Extended Family's Desire, Determination and Will to Give a Profoundly Intellectually Disabled Member the Best

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9781478710042: Joanna, God's Special Child: Joanna's Extended Family's Desire, Determination and Will to Give a Profoundly Intellectually Disabled Member the Best

Richard Cardinal Cushing, Roman Catholic Archbishop of Boston in the 1950s, referred to individuals with mental retardation as "God's special children." Joanna was one of those children, and this is the story of her mother's desire, her extended family's determination, and a surrogate parent's will to give a profoundly intellectually disabled family member the best life possible. Joanna was only 15 years old when her mother died prematurely during a heart operation. Three generations of her family worked with military precision to care for their orphaned teenage family member until Joanna's death as a senior citizen. Family members monitored Joanna's care at the Fernald Developmental Center. They brought Joanna home a few days per week for home cooking, leisure time, day trips, and inclusion in special family events. And they monitored her pension benefits so she could enjoy all the neighborhood functions possible from her Fernald condominium-like apartment. Over the years, Joanna's cousin George became a surrogate brother and then a surrogate parent to her. George had been active with several family member advocacy organizations, where he gained the knowledge to assist with Joanna's care. When Joanna's Down syndrome became Alzheimer's, George was there, every day, to make her last few years as comfortable as possible. His book not only chronicles the love and dedication of one family-it also contains a wealth of information and resources for those caring for their own "special child of God."

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About the Author:

About the Author: George Mavridis was Joanna's cousin. This memoir is his special thank you to Joanna M. Bezubka for being his surrogate sister for 24 years and surrogate daughter for the next 21 years. Mavridis was active with several parent advocacy organizations and served as president of three organizations (Fernald League, COFAR, and Fernald Corporation). For the last decade he scheduled appointments with legislative aides for New England senators and representatives for VOR's Washington Initiative each June. Mavridis was a graduate of Tufts University, an officer in the United States Navy, and a registered structural engineer.

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George Mavridis
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Book Description Outskirts Press, United States, 2013. Paperback. Book Condition: New. 226 x 152 mm. Language: English . Brand New Book ***** Print on Demand *****.Richard Cardinal Cushing, Roman Catholic Archbishop of Boston in the 1950s, referred to individuals with mental retardation as God s special children. Joanna was one of those children, and this is the story of her mother s desire, her extended family s determination, and a surrogate parent s will to give a profoundly intellectually disabled family member the best life possible. Joanna was only 15 years old when her mother died prematurely during a heart operation. Three generations of her family worked with military precision to care for their orphaned teenage family member until Joanna s death as a senior citizen. Family members monitored Joanna s care at the Fernald Developmental Center. They brought Joanna home a few days per week for home cooking, leisure time, day trips, and inclusion in special family events. And they monitored her pension benefits so she could enjoy all the neighborhood functions possible from her Fernald condominium-like apartment. Over the years, Joanna s cousin George became a surrogate brother and then a surrogate parent to her. George had been active with several family member advocacy organizations, where he gained the knowledge to assist with Joanna s care. When Joanna s Down syndrome became Alzheimer s, George was there, every day, to make her last few years as comfortable as possible. His book not only chronicles the love and dedication of one family-it also contains a wealth of information and resources for those caring for their own special child of God. Bookseller Inventory # AAV9781478710042

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Book Description Outskirts Press, United States, 2013. Paperback. Book Condition: New. 226 x 152 mm. Language: English . Brand New Book ***** Print on Demand *****. Richard Cardinal Cushing, Roman Catholic Archbishop of Boston in the 1950s, referred to individuals with mental retardation as God s special children. Joanna was one of those children, and this is the story of her mother s desire, her extended family s determination, and a surrogate parent s will to give a profoundly intellectually disabled family member the best life possible. Joanna was only 15 years old when her mother died prematurely during a heart operation. Three generations of her family worked with military precision to care for their orphaned teenage family member until Joanna s death as a senior citizen. Family members monitored Joanna s care at the Fernald Developmental Center. They brought Joanna home a few days per week for home cooking, leisure time, day trips, and inclusion in special family events. And they monitored her pension benefits so she could enjoy all the neighborhood functions possible from her Fernald condominium-like apartment. Over the years, Joanna s cousin George became a surrogate brother and then a surrogate parent to her. George had been active with several family member advocacy organizations, where he gained the knowledge to assist with Joanna s care. When Joanna s Down syndrome became Alzheimer s, George was there, every day, to make her last few years as comfortable as possible. His book not only chronicles the love and dedication of one family-it also contains a wealth of information and resources for those caring for their own special child of God. Bookseller Inventory # AAV9781478710042

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Book Description Outskirts Press. Paperback. Book Condition: New. Paperback. 200 pages. Dimensions: 8.9in. x 6.0in. x 0.4in.Richard Cardinal Cushing, Roman Catholic Archbishop of Boston in the 1950s, referred to individuals with mental retardation as Gods special children. Joanna was one of those children, and this is the story of her mothers desire, her extended familys determination, and a surrogate parents will to give a profoundly intellectually disabled family member the best life possible. Joanna was only 15 years old when her mother died prematurely during a heart operation. Three generations of her family worked with military precision to care for their orphaned teenage family member until Joannas death as a senior citizen. Family members monitored Joannas care at the Fernald Developmental Center. They brought Joanna home a few days per week for home cooking, leisure time, day trips, and inclusion in special family events. And they monitored her pension benefits so she could enjoy all the neighborhood functions possible from her Fernald condominium-like apartment. Over the years, Joannas cousin George became a surrogate brother and then a surrogate parent to her. George had been active with several family member advocacy organizations, where he gained the knowledge to assist with Joannas care. When Joannas Down syndrome became Alzheimers, George was there, every day, to make her last few years as comfortable as possible. His book not only chronicles the love and dedication of one family-it also contains a wealth of information and resources for those caring for their own special child of God. This item ships from multiple locations. Your book may arrive from Roseburg,OR, La Vergne,TN. Paperback. Bookseller Inventory # 9781478710042

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