Fragile X Fred - Softcover

Bassell, Julia; Weber, Jayne Dixon; Visootsak MD, Jeannie

Softcover

ISBN 10: 151179089X ISBN 13: 9781511790895

Publisher: CreateSpace Independent Publishing Platform, 2015

Synopsis

Look around you. Every person you meet has been molded by an intertwining of genetic information and personal experience. Fragile X syndrome is a genetic disorder that is not widely understood. This book aims to help people of all ages understand that although individuals with fragile X syndrome do have certain challenges, these challenges do not define them. This book is a valuable tool for educators, siblings, parents, and children with fragile X syndrome.

About this title

About the Author

Jayne Dixon Weber, is the Director of Support Services at the National Fragile X Foundation. In addition to assisting with the development of the National Fragile X Foundation’s “Adolescent and Adult Project,” Jayne authored the book Transitioning ‘Special’ Children into Elementary School and was editor of the book Children with Fragile X Syndrome: A Parents’ Guide. She is the co-leader of the Colorado Fragile X Community Support Network (parent support) group. Jayne has two children—one, an adult son with fragile X syndrome, and the other, a daughter, who is an occupational therapist. She likes to read, enjoys photography, and goes for a walk every day. Jeannie Visootsak, MD, FAAP, Associate Professor, is a board-certified Developmental-Behavioral Pediatrician at Emory University School of Medicine, Atlanta, GA. She is the Medical Director of the Fragile X Syndrome Clinic and Fragile X Syndrome Clinical Trial Unit at Emory University. The Fragile X Syndrome Clinic was established in 2004 to meet the needs of individuals with fragile X syndrome and their family members. Dr. Visootsak co-founded the Fragile X Clinical and Research Consortium in collaboration with the National Fragile X Foundation. She is also a member of the National Fragile X Foundation’s Scientific & Clinical Advisory Committee and Executive Committee Council. Additionally, she has received the Jarrett Cole Clinical Award for dedicated service to families in the worldwide Fragile X community. Julia L. Bassell, is a current pre-medical undergraduate student majoring in Neuroscience and Behavioral Biology at Emory University. She has conducted clinical research on fragile X syndrome and Down syndrome, and volunteers with Best Buddies and Running Mates.

Edition details

• Publisher: CreateSpace Independent Publishing Platform
• Publication date: 2015
• Language: English
• ISBN 10: 151179089X
• ISBN 13: 9781511790895
• Binding: Paperback
• Illustrator: Roteman Slawin Jordana
• Number of pages: 34