This specific ISBN edition is currently not available.View all copies of this ISBN edition:
How do you cope when your baby is born with a severe and life-limiting brain disorder? With huge amounts of love, compassion and bloody-mindedness, if this compelling true-life account is anything to go by! Little Amberlie Murphy was born with lissencephaly (a smooth brain). In her short life, however, filled as it was with relentless seizures and terrible feeding and breathing problems, if she knew nothing else, she knew she was greatly loved and wanted by her family - so much so that her dedicated mother, Sandra, has written this moving and often harrowing story commemorating Amberlie's seven years. Sandra pulls no punches - she was often angry at everyone and everything, and goes into detail about Amberlie's symptoms and how they were managed with an overwhelming cocktail of medications. But in the end the book is a testament not only to her undying love, but also to her gratitude to the medical profession for pulling out all the stops in an effort to help Amberlie. 'A Headbanger's Ball' is about unconditional love and acceptance - how a family coped, cried, laughed, celebrated and preserved their sanity - how they all joined Amberlie in her fight to stay alive, yet still functioned as a normal family.
"synopsis" may belong to another edition of this title.
Sandra Murphy was born and grew up in South London. Before her marriage she worked in a housing association as a personnel secretary, and as a personal assistant in a publishing company. For twelve years after marrying, she stayed at home as a 'domestic goddess', mother and carer to her four children. After her disabled daughter Amberlie died, she became a teaching assistant and has attained various further qualifications in special needs and supporting education. She is also a member of the lissencephaly contact group. She and husband Bill live in Surrey with their now grown-up children. Sandra has also written a fantasy-fiction title: 'Withercraft: The Obsidian Box' which was published in 2014 on Amazon Kindle and Createspace. For relaxation she also enjoys painting in oils and acrylics and country walking with her husband, soppy labrador and mischievous pug.
"About this title" may belong to another edition of this title.
Book Description CreateSpace Independent Publishing Platform, 2008. Condition: New. book. Seller Inventory # M1512317020
Book Description CreateSpace Independent Publishing Platform. Paperback. Condition: Brand New. This item is printed on demand. Seller Inventory # zk1512317020