Ethics and Genetics: A Workbook for Practitioners and Students (Teaching Ethics: Material for Practitioner Education)

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9781571816009: Ethics and Genetics: A Workbook for Practitioners and Students (Teaching Ethics: Material for Practitioner Education)
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Genetic information plays an increasingly important role in ourlives. As a result of the Human Genome Project, knowledge ofthe genetic basis of various diseases is growing, withimportant consequences for the role of genetics in clinicalpractice, health care systems and for society at large. In theclinical setting genetic testing may result in a better insightinto susceptibility for inheritable diseases, not only before orafter birth, but also at later stages in life. Besides prenataltesting and pre-conceptional testing, predictive testing hasresulted in new possibilities for the early detection, treatmentand prevention of inheritable diseases.

However, not all inheritable diseases that can be predicted onthe basis of genetic information can be treated or cured.Should we offer genetic tests to people for untreatablediseases? Should we test every individual who wants to knowhis or her genetic status? Should we inform family membersabout the results of genetic tests of individuals, even whenthere are no possibilities for treatment? What, in such cases,is the role of the "right-not-to-know"? Should we informfamily members when there is only an increased risk of adisease? This book deals with the ethical issues of clinicalgenetics, as well as ethical issues that arise in geneticscreening, the research of populations, and the use of geneticinformation for access to insurance and the workplace.

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About the Author:

Guido de Wert is Senior Research Fellow at the Institute for Bioethics at the University of Maastricht and a Crown-appointed member of the Health Council of the Netherlands.

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Guido de Wert; Ruud H.J. ter Meulen; Roberto Mordacci; Mariachiara Tallacchini
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Book Description Berghahn Books, Incorporated, United States, 2003. Hardback. Condition: New. Language: English. Brand new Book. Genetic testing plays an increasingly important role in our lives. As a result of the Human Genome Project, knowledge of the genetic basis of various diseases is growing, with important questions for the role of genetics in clinical practice, health care systems, and for society at large. Should we test every individual who wants to know his or her genetic status? Should we inform family members about the results of genetic tests of individuals, even when there are no possibilities for treatment? Is it necessary to inform family members when there is only an increased risk of a disease? This book deals with the ethical issues of clinical genetics, as well as ethical issues that arise in genetic screening, the research of populations, and the use of genetic information for access to insurance and the workplace. It will be of interest to all those concerned with these questions, as well as forming a crucial part of the training curriculum for medical and nursing professionals. These three books introduce key areas in current medical ethics to readers with no previous knowledge in the field.Structured around a variety of guided activities and real-life cases, the authors and cases represent a wide range of European backgrounds and professional disciplines, including medicine, bioethics, law, sociology, theology and philosophy. The general editor is Donna Dickenson, John Ferguson Professor at the University of Birmingham and Director of the Centre for the Study of Global Ethics. She is also the author of Death, Dying and Bereavement (Sage, 2000). Seller Inventory # AAN9781571816009

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Book Description Berghahn Books, Incorporated, United States, 2003. Hardback. Condition: New. Language: English. Brand new Book. Genetic testing plays an increasingly important role in our lives. As a result of the Human Genome Project, knowledge of the genetic basis of various diseases is growing, with important questions for the role of genetics in clinical practice, health care systems, and for society at large. Should we test every individual who wants to know his or her genetic status? Should we inform family members about the results of genetic tests of individuals, even when there are no possibilities for treatment? Is it necessary to inform family members when there is only an increased risk of a disease? This book deals with the ethical issues of clinical genetics, as well as ethical issues that arise in genetic screening, the research of populations, and the use of genetic information for access to insurance and the workplace. It will be of interest to all those concerned with these questions, as well as forming a crucial part of the training curriculum for medical and nursing professionals. These three books introduce key areas in current medical ethics to readers with no previous knowledge in the field.Structured around a variety of guided activities and real-life cases, the authors and cases represent a wide range of European backgrounds and professional disciplines, including medicine, bioethics, law, sociology, theology and philosophy. The general editor is Donna Dickenson, John Ferguson Professor at the University of Birmingham and Director of the Centre for the Study of Global Ethics. She is also the author of Death, Dying and Bereavement (Sage, 2000). Seller Inventory # AAN9781571816009

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