On a High Wire, Without a Net!: Living with Huntington's Disease

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9781615829309: On a High Wire, Without a Net!: Living with Huntington's Disease
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Susan Lawrence is one of 10 children in a family with more than 44 direct family members “at risk” for Huntington’s disease. In a routine doctor’s visit she was informed that she was negative for HD. But, after seeing her genetic results, she realized that she was wrongly tested for Alzheimer’s. If she had relied on a verbal consultation, Susan would not be aware that she is now living with a debilitating disease with no cure. Today, more than a quarter of a million Americans have HD or are “at risk” of inheriting the disease from a parent. Family members have a 50/50 chance of having the disease when one or both parents have tested positive. Susan began writing therapeutically and now shares her experiences and knowledge of HD openly to help others find a way to keep hope in the forefront of an ongoing battle to find a cure.

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