Family Caregivers on the Job: Moving Beyond ADLs and IADLs

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9781881277736: Family Caregivers on the Job: Moving Beyond ADLs and IADLs
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More than 27 million family caregivers in the United States provide care to seriously ill or disabled family members at home.

But for all the increased attention that family caregivers have received in recent years, we still have no good way of fully describing or accurately measuring what family caregivers actually do, what it is that makes their work rewarding or challenging, and what help they might need to continue. Absent this knowledge, we cannot begin to design the educational and support services that might spell the difference between satisfaction and burnout, fulfillment and despair. Instead, we continue to rely on Activities of Daily Living (ADLs) and Instrumental Activities of Daily Living (IADLs)— tools developed to measure care recipients' functional deficits—to assess the realities of the lives of their family care providers.

This volume captures a year's worth of fruitful debate among experts convened from around the country to analyze the limitations of ADLs and IADLs and to explore alternatives.

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About the Author:

Carol Levine directs the United Hospital Fund’s Families and Health Care Project. She was director of the Citizens Commission on AIDS in New York City from 1987-91 and director of the Orphan Project 1991-96. As a senior staff associate of The Hastings Center, she edited the Hastings Center Report. In 1993 she was awarded a MacArthur Foundation Fellowship for her work in AIDS policy and ethics. She has written and edited several books and articles, including a "Sounding Board" essay in the New England Journal of Medicine entitled "The Loneliness of the Long-Term Care Giver," Always On Call: When Illness Turns Families into Caregivers (2004), Making Room for Family Caregivers: Seven Innovative Hospital Programs (2003), and The Cultures of Caregiving: Conflict and Common Ground among Families, Health Professionals and Policy Makers (2004).

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