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Summer Born: A Life With Cerebellar Ataxia
Mandy Wheeler had been living a teenage life filled with school, friends, and her first love. Her increasing poor coordination causes concern among family and friends so she goes to see a neurologist. She learns that she has a progressive neurological disorder called Cerebellar Ataxia: a progressive degeneration of the cerebellum which impairs coordination. The news leaves her frustrated and frightened, but the support of friends, family, and The National Ataxia Foundation eases her anxiety. She journeys through life, love, and a dream on her way toward the acceptance of her disability.
Over 150,000 people in the United States have an ataxic disorder. This novel sheds light on a little known debilitating condition.
From the Author: The following was an introduction to "Summer Born: A Life With Cerebellar Ataxia" that I gave to the Los Angeles Ataxia Support Group on July 11,2009:
""Summer Born' is the story of 'A Life With Cerebellar Ataxia'. Mandy Wheeler is just 17 when she learns that she has Ataxia due to cerebellar degeneration. The book begins shortly before she is diagnosed, then it describes the events of her diagnosis, her reaction to the diagnosis, and how she struggles to accept her disability.
First, I want to discuss the two reasons why I wrote "Summer Born". The first is, of course, Ataxia awareness. I feel very strongly that awareness can be enhanced by seeing and reading about the experiences of a person with Cerebellar Ataxia. Mandy Wheeler is a fictional character that is based on my own experiences with Cerebellar Ataxia. She learns about her disorder after she visits the neurologist. At first, she is frightened and frustrated, but with the support of friends, family, and The National Ataxia Foundation she learns to accept her disability.
The second reason why I wote "Summer Born" was because it was such a cathartic and rejuvenating experience for me. I wanted to relate to those that are not familiar with Cerebellar Ataxia some of the things that we go through: the visits to the neurologist's office, the emotional anguish that we go through after a diagnosis, and the unintentional physical trauma that we have to go through, for example-falling.
This concludes my brief introduction to "Summer Born: A Life With Cerebellar Ataxia". I do hope that each of you will read and enjoy the book."
Title: Summer Born: A Life With Cerebellar Ataxia
Publisher: Outskirts Press
Publication Date: 2009
Book Condition: Used: Good
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