Children with Fragile X Syndrome: A Parents' Guide - Softcover

Softcover

ISBN 10: 0933149778 ISBN 13: 9780933149779

Publisher: Woodbine House, 2000

Synopsis

Provides parents of children with Fragile X syndrome, believed to be the genetic cause of mental retardation, with information on diagnosis, education, daily care, and related legal issues.

About this title

From the Publisher:

A review... "Woodbine House has done it again! They have created another thorough yet easy to understand guide for parents of special needs children. This one is especially important because of the absence of other good parenting texts on Fragile X Syndrome, which is one of the most common genetic causes of mental retardation. Recent evidence suggests it may even be more prevalent than Down syndrome. The book follows the publisher's well-established format covering topics such as diagnosis, medical concerns, family life, education, legal issues, daily care, and advocacy. Each chapter closes with statements from other parents. As usual, the resource list in the back is well worth the cost of the book. Of special note is the chapter on education, which offers one of the most extensive coverages of Individual Education Plans (IEPs) and other educational hurdles offered by any book in recent years. A must have purchase for all consumer health collections." --Library Journal (starred review), June 15, 2000

About the Author:

Jayne Dixon Weber is the parent of two children; the oldest is an eleven-year-old who has fragile X syndrome. She is an advocate in her community and the author of Transitioning "Special" Children (1994). She and her family live in Boulder, Colorado.

About this edition

• Publisher: Woodbine House
• Publication date: 2000
• ISBN 10: 0933149778
• ISBN 13: 9780933149779
• Binding: Paperback
• Edition number: 1
• Number of pages: 460
• Editor: Weber Jayne Dixon