The Peripatetic Pursuit of Parkinson Disease - Softcover

The Parkinsons Creative Collective; Lindy Ashford; Laura Brooks; Perry Cohen; Bob Cummings; May Griebel; Linda Herman; Katherine Huseman; Pamela Kell; Girija Muralidhar; Peggy Willocks; Paula Wittekind

Softcover

ISBN 10: 0989326608 ISBN 13: 9780989326605

Publisher: The Parkinsons Creative Collective, Inc., 2013

Synopsis

For those with Parkinson* Disease (PD), it's a support group between two covers; and for everyone else, it's a window into the world of living with PD.
Personal approach Beautiful design Global scope

The Peripatetic Pursuit of Parkinson Disease provides information and inspiration to improve life with PD. The Parkinsons Creative Collective compiled this anthology of experiences containing articles by over 100 experts on PD -- the patients themselves. They speak with compassion and honesty to those newly diagnosed as well as to those who have lived with PD for years. Personal narratives help the reader understand the emotions and remember the facts in this full color, illustrated resource. Going beyond the basics and presented from the patients viewpoint, the book includes: strategies to improve health, quality of life, and wellness in spite of PD; opinions about the development of new treatments; and how to face a wide range of life challenges that accompany a PD diagnosis.

Who should read this book?
People with PD, and their friends and family
Physicians and healthcare workers
Researchers and organizations
It's the perfect read for anyone who wants to learn more, to understand PD on a visceral level and improve living with any chronic disease. If you are seeking a book that combines the kind of honest, practical information found in the Boston Women's Health Collective's Our Bodies, Ourselves with the magnetic beauty of your favorite coffee table book, The Peripatetic Pursuit of Parkinson Disease is it!

*Note: the new trend is to drop the apostrophe s in Parkinson's, unless it is in an organization's name .

About this title

About the Author:

The Parkinsons Creative Collective (PCC), the editor and publisher of this book, is a not-for-profit corporation. PCC's editors are all unpaid volunteers who live in nine U.S. states and one, the graphic designer, in the United Kingdom. Given the geographical distances, they worked and produced the book in frequent online sessions. Combined, they have over 190 years of experience with PD, including participating in many clinical trials, leading PD advocacy campaigns and working with support groups and others to improve living with the chronic disease known as PD.

Review:

This is a masterpiece, pure and simple. This is a book that will change your perspective on PD forever. Jon Stamford, PhD
...Although there is much crossover, the book is divided into eight chapters Parkinson Basics and Beyond, Parkinson Is More Than a Movement Disorder, Helping Ourselves, Quality of Life, The Difficult Bits, PD Activism, Advocacy in Action and Going International .

If you're looking for a simple didactic, here's what you should do approach to Parkinson, then you should go elsewhere. If you want to be spoon fed, like a child, this book is not the answer. This is not a book for mental couch potatoes. This is a book for active enquiring minds who just happen to have PD.

So if you are a thinker and like your brain cells regularly tickled, this book is for you. If you want answers, they are here. But more importantly, so are questions and ideas. And if you want to really understand your PD, what it means to you as a person and to those around you, you are already knocking on the door.

This is a book which prompts original thought, challenges existing dogma, provokes responses, and empowers the reader. It is further even than that -- it's an aerobic workout for the brain!

The book is also accessible. Individual sections are short and punchy. Personal testimonies abound, providing intimacy and a human scale to the neurobiology. Everything is here -- from reactions to diagnosis through to the ethics of sham surgery in clinical trials. And all points in between.

You may not know it yet but this book is what you have been waiting for. Jon Stamford, PhD, co- founder of Parkinson s Movement,UK

--Review: On the Move, Newsletter, UK, Autumn 2013.

About this edition

• Publisher: The Parkinsons Creative Collective, Inc.
• Publication date: 2013
• ISBN 10: 0989326608
• ISBN 13: 9780989326605
• Binding: Paperback
• Edition number: 1
• Number of pages: 320
• Editor: The Parkinsons Creative Collective