Alexandra Deford, a precious and precocious girl, was just eight years old when she died in 1980 following a battle against the debilitating effects of cystic fibrosis, the number-one genetic killer of children. Her poignant and uplifting story has touched the hearts of millions. This edition contains previously unpublished photographs and a new postscript revealing how the Desford family came to terms with the loss of a child and sister.
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