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In a masterful effort of investigative reporting, freelance journalist Hillary Johnson reveals for the first time how Chronic Fatigue Syndrome was allowed to grow over the course of a decade into a major public health threat under the disbelieving and ultimately blind eye of the American medical research establishment.
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About the Author:
Hillary Johnson has been a staff writer at Congressional Quarterly, Women’s Wear Daily, Life, and was a contributing editor at Rolling Stone. She has written for the Wall Street Journal, the Christian Science Monitor, Town & Country, Vogue, and Vanity Fair, among other publications. In 1987, her series about myalgic encephalomyelitis, a.k.a., “CFS”, for Rolling Stone was nominated for a National Magazine Award.
From Publishers Weekly:
By bringing chronic fatigue syndrome (CFS) out of the shadows and squarely onto the nation's health agenda, Johnson's groundbreaking, compelling report does for it what Randy Shilts's And the Band Played On did for the AIDS epidemic. Once derisively dismissed as "yuppie flu," CFS was recognized as a legitimate, cohesive disease entity by the Centers for Disease Control only in 1990, six years after the first mass outbreaks. An infectious immune disorder that affects millions worldwide (the exact pathogen is unknown), CFS causes debilitating exhaustion, severe aching and headaches and fever, and in many cases affects the brain, causing memory and cognitive impairment, seizures and brain lesions. Freelance journalist Johnson (herself a CFS sufferer in the mid-1980s) interviewed hundreds of patients, scientists, doctors and government officials. Writing with quiet fury, she builds a devastating picture of the U.S. government research establishment's decade-long strategy of avoidance and denial. Her epic-length report draws chilling parallels between CFS and AIDS: desperate CFS patients organize support groups, underground clinics, activist coalitions; trials of Ampligen, a promising drug, are halted by the FDA; patients lose medical insurance simply for being diagnosed with CFS-a policy that continues to the present among major carriers. Author tour. (Mar.) FYI: The title refers to Canadian physician Sir William Osler (1849-1919), who exhorted his medical students to be on guard against lockstep thinking. See Book News (Dec. 4) for the story behind the book.
Copyright 1996 Reed Business Information, Inc.
Copyright 1996 Reed Business Information, Inc.
"About this title" may belong to another edition of this title.
- PublisherDiane Pub Co
- Publication date1996
- ISBN 10 0756761832
- ISBN 13 9780756761837
- BindingPaperback
- Edition number1
- Number of pages720
- Rating
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