Children with multiple disabilities and complex neurological problems, often compounded by psychological and behavioral problems, need care provision beyond the normal community and hospital pediatric services. These children and their families need the help of a variety of specialists. Organizing these is a complex problem and there is a constant risk of the family's needs being overridden by the professionals' convenience. Dr. Robards describes ways of providing all the necessary specialist care while at the same time increasing the family's participation and understanding to its optimum level. Illustrating his proposals with a variety of lively case histories, the author demonstrates that a rigid structure can never meet these children's needs. This practical book offers clear recommendations about record keeping, integrating voluntary support groups into the professionals' work, the location and layout of premises used by the professionals, and many other factors collectively critical to the efficient and humane delivery of this element of community care.
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Practical detail for special community care provision is brought into lively focus using case history illustration.
"...supported and endorsed by The Spastics Society of London..." Pediatric Mental Health
"...outlines the multidisciplinary and medical approaches to providing services for disabled children...his description of the various consultation models that are applicable is particularly helpful and links well with the issues dear to the hearts of parents...his approach is a novel one in that essentially this is a 'how to do it' manual for disability professsionals, particularly pediatricians, and it successfully achieves its aim." Lewis Rosenbloom, British Medical Journal
"The value of this text is that the reader is chalenged to reflect on how multidisciplinary teams are organized and operate in their own communities and consider what assumptions underlie their particular pattern of team function...This book will be especially helpful to clinicians and planners of paediatric health and education services..." Finuala Murphy, Physical & Occupational Therapy in Pediatrics
"The book presents practical, useful information about how to structure and operate a multidisciplinary team for children with chronic health conditions and their families. Clinical vignettes, discussion of terminology, and exposition of the structure and process of the team serve as a useful reference for the creation and operation of any multidisciplinary team....In general, this book should benefit the subset of health professionals interested in the use of teams to meet the variety of needs presented by children with chronic health conditions and their families." Barbara W. Desguin, Doody's Annual
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