Using powerfully gripping personal stories of parents and professionals, this book conveys the day-to-day struggles and triumphs of caring for children with persisting medical and physical needs.
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There are few crises as devastating as finding out that one's child is disabled or seriously ill--one of the themes of this powerful book designed for parents and health professionals. The authors, a psychiatrist and a mother of a special-needs child, cover all the implications of living with mental and physical disabilities. Having a "special" child puts the entire family at risk, and such families must perform extraordinary tasks day after day. The authors pull no punches; the talk is frank, alternately depressing and uplifting. Dozens of entries from parents and healthcare workers aim to educate, invite change, and stimulate personal growth. A list of parent resources and a glossary are included. This book is excellent for parents, doctors, nurses, therapists, and teachers. Public and school libraries should consider.
- Linda Beck, Indian Valley P.L., Telford, Pa.
Copyright 1992 Reed Business Information, Inc.
It was very interesting to me to read what other parents had to say...[y]ou have written an excellent resource -- Addie Jesswein, Pilot Parents of Minnesota
The authors, a child psychiatrist and a special education teacher-parent, have listened carefully to caregivers, families and patients. -- Candlelighters, Children Cancer Foundation Bulletin, American Cancer Society.
This timely book is an important addition to our cumulative knowledge in a developing aspect of health care... -- Journal, American Medical Association
Your book should help families and medical professionals become strong partners. -- The Bridge (Parents of children with spina bifida)
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