Provides parents of children with Fragile X syndrome, believed to be the genetic cause of mental retardation, with information on diagnosis, education, daily care, and related legal issues.
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Jayne Dixon Weber is the parent of two children; the oldest is an eleven-year-old who has fragile X syndrome. She is an advocate in her community and the author of Transitioning "Special" Children (1994). She and her family live in Boulder, Colorado.
Woodbine House has done it again! They have created another thorough yet easy-to-understand guide for parents of special-needs children. This one is especially important because of the absence of other good parenting texts on Fragile X Syndrome, which is one of the most common genetic causes of mental retardation. Recent evidence suggests that it may be even more prevalent than Down Syndrome. The book follows the publisher's well-established format, covering topics such as diagnosis, medical concerns, family life, education, legal issues, daily care, and advocacy. Each chapter closes with statements from other parents. As usual, the resource list in the back is well worth the cost of the book. Of special note is the chapter on education, which offers one of the most extensive coverages of Individual Education Plans (IEPs) and other educational hurdles offered by any book in recent years. Essential for all consumer health collections.DKellyJo Houtz Griffin, Eatonville,WA
Copyright 2000 Reed Business Information, Inc.
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