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Synopsis
In eye-opening narrative based on their parent support group process, nine mothers explore the intense, sometimes painful, emotional terrain of raising a child with special needs. The children who have helped shape the women's lives have a variety of special needs, including autism, Down syndrome, cerebral palsy, ADD, and multiple disabilities. The successes, setback, struggles, and joys shared here cover important aspects of daily life: relationships with professional providers, family life, work, school issues, and feelings about the 'self' and closest friends and family members.
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About the Author
Jayne D.B. Marsh, M.S.N., M.P.A., a consultant on the PIP project, is Research Associate at the Edmund S. Muskie Institute of Public Affairs at the University of Southern Maine, and teaches a parenting class through the University's Continuing Education Department.
Review
"Here is a book that is comforting for parents, who are reassured that they're not alone; eye-opening for the public..." -- --Library Journal, June 1995
In From the Heart: On Being the Mother of a Child with a Disability, nine mothers explore the intense, sometimes painful, emotional terrain of raising children with special needs in eye-opening narratives developed from their parent support group meetings. The children who shape these women's lives have disabilities that include autism, Down syndrome, Tourette syndrome, ADD, and multiple disabilities. From the Heart is organized around several themes: relationships with professionals; family life and school issues; and issues about the "self" and closest friends and family. Their experiences resonate with the common struggles of healing; being heard and understood; coping with life; and dealing with greater emotional intensity than most parents do. In revealing what is most important and most difficult for them, these mothers affirm the experience of other parents like themselves. From the Heart speaks to anyone who may know little about raising a child with special needs -- until they have one and must then forge a strong family unit nonetheless. -- Midwest Book Review
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- PublisherWoodbine House
- Publication date1995
- ISBN 10 0933149794
- ISBN 13 9780933149793
- BindingPaperback
- Edition number1
- Number of pages149
- Rating
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