Lyme Madness: Rescuing My Son Down The Rabbit Hole of Chronic Lyme Disease. - Softcover

Dennis, Lori

Softcover

ISBN 10: 0995168911 ISBN 13: 9780995168916

Publisher: SoulWork Publishing, 2016

Synopsis

Chronic Lyme disease is a complicated, confusing, and terrifying abyss—a black hole of human suffering, conflicting views, widespread corruption, and unrelenting medical navigation. Lyme Madness chronicles the author’s and adult son’s medical odyssey while capturing the current landscape of immeasurable suffering, twisted politics and medical madness that ensues worldwide. It provides a platform for the many voices of chronic Lyme sufferers, caregivers, and activists, along with the very few doctors and politicians all fighting for awareness, support and justice around the globe. It is a bold testament to the undeniable existence of this medical nightmare where millions are suffering and few are listening. The voices and pleas for medical acknowledgement of this widely negated disease are powerful, compelling, and a clarion call-to-action for those in power to put an end to the political roadblocks that have kept chronic Lyme disease in the shadows for more than forty years.

About this title

About the Author

Ever since her adult son fell ill in the fall of 2012, her only focus has been to help him get well. Little did she know at the start of this medical odyssey just how deep and unending this rabbit hole would be. While helping her son navigate his medical journey from “no answers” to continued recovery, she was determined to write this book to help others navigate this long and arduous path from illness to wellness—the overwhelming and complicated trek that comes with having chronic Lyme disease. She was also determined to provide a platform for other Lyme sufferers to have their voices heard in an effort to end the madness. A madness where millions are suffering around the globe while mainstream medicine continues to turn its back on the sick and infirm.

Review

With Lyme Madness, Lori Dennis joins the Pantheon of alarmed mothers who have 'banged the teapots' to force dense and complacent governments to DO SOMETHING to address the dangerous disease they perceived devastating their children, families and communities. This eye-opener will be helpful to others who find themselves grappling with Lyme and other tick-borne diseases, navigating an arena full of contradictory advice and adversarial experts. It is also a clarion call to all to compel governments and their public health infrastructures to acknowledge the many problems with which these diseases confront us and to commit the financial, scientific and medical resources and the grit to solve them-- to end the madness. Kenneth B. Liegner, M.D. After reading Lyme Madness, it raises the question-what is the more powerful force, a dysfunctional healthcare system or a motivated mother who wants the best for her son? The problems her son encountered accessing proper assessment and care is a story we have heard far too many times, in Canada, in the United States and in many other countries. Many will read this book and identify with [the author's] frustration, be motivated by her persistence and gain some insights on effective strategies. One thing is clear, when dealing with an illness that is controlled by dogma and special interests, it is necessary to do thorough research and to be a tenacious advocate. I am sure this book will help others who are searching for answers and solutions. Robert C Bransfield, MD, DLFAPA Lyme Madness is a compelling, heart-breaking story of a Canadian mother dedicating all of her time, energy, intelligence and love to get her son back to health. The author's personal experience combined with her professional knowledge will provide other parents with a guide through this rabbit hole and will save them much frustration, time and money. It provides them with insights into the many medical and psychological pitfalls in Lymeland, with practical approaches, with a brave investigation of reasons why the status quo has been like this for over forty years and with a range of stories by other people. These personal stories will validate other parents and Lyme patients' own sanity on an often lonely journey back to health--with the glimmers of light at the end of the tunnel that this book fortunately also provides. May this book add to the mounting evolution of activities to end the Madness of negating and downplaying Lyme as the global epidemic that it is." Huib Kraaijeveld, author of "Shifting the Lyme Paradigm; the Caretakers' Guide through the Labyrinth" and founder of the On Lyme Foundation, the Netherlands I applaud Lori Dennis for her efforts in attempting to educate the public about this life-altering/life threatening infection misclassified as a simple nuisance disease. Personal experiences described in "Lyme Madness" are not new. However, stories like this have been hidden from the public for over three decades. "Madness" for sure and a crime against humanity on a growing global scale. Shameful affair indeed as a congressional investigation is long overdue. Kudos to Lori Dennis for writing "Lyme Madness," a must read for the ill-informed. Carl Tuttle, Lyme Activist, Hudson, NH USA Lori Dennis has transformed her personal experience of chronic Lyme and coinfections into a road map for navigating the complications of this medical and political disease. She also provides powerful examples of the resilience, innovation and growing power of those who reject these human rights abuses. This is a memoir of a mother fighting for the survival of her son and she well understands how the madness embraced by the CDC Lyme policy is deadly for those living with chronic Lyme. Jenna Luche-Thayer, Lyme activist, former Senior Advisor at the United Nations and other organizations

Edition details

• Publisher: SoulWork Publishing
• Publication date: 2016
• Language: English
• ISBN 10: 0995168911
• ISBN 13: 9780995168916
• Binding: Paperback
• Number of pages: 488