Human Germline Genome Modification and the Right to Science: A Comparative Study of National Laws and Policies - Hardcover

Hardcover

ISBN 10: 1108499872 ISBN 13: 9781108499873

Publisher: Cambridge University Press, 2020

Synopsis

The advent of the CRISPR/Cas9 class of genome editing tools is transforming not just science and medicine, but also law. When the genome of germline cells is modified, the modifications could be inherited, with far-reaching effects in time and scale. Legal systems are struggling with keeping up with the CRISPR revolution and both lawyers and scientists are often confused about existing regulations. This book contains an analysis of the national regulatory framework in eighteen selected countries. Written by national legal experts, it includes all major players in bioengineering, plus an analysis of the emerging international standards and a discussion of how international human rights standards should inform national and international regulatory frameworks. The authors propose a set of principles for the regulation of germline engineering, based on international human rights law, that can be the foundation for regulating heritable gene editing both at the level of countries as well as globally.

About this title

About the Author

Andrea Boggio is Professor of Legal Studies at Bryant University, Rhode Island. He holds a J.S.D. from Stanford University Law School.
 
Jessica Almqvist is Professor of International Law and Human Rights at the Faculty of Law of the University of Lund. She holds a Ph.D. title in Law from the European University Institute.
 
Cesare Romano is Professor of Law and W. Joseph Ford Fellow at the Loyola Law School in Los Angeles. He holds a Ph.D. from the Graduate Institute of International Studies of the University of Geneva.

From the Back Cover

"This book is a welcome and extensive assessment of how human germline genome modification is currently regulated...an essential guide for scientists and lawmakers."
George Church, author of Regenesis: How Synthetic Biology Will Reinvent Nature and Ourselves

"This book is a very valuable contribution to the current, sometimes fierce debates about how to regulate human germline genome editing and particularly how it might be possible to establish a regulatory framework."
Robin Lovell-Badge, the Francis Creek Institute

"This thorough assessment of national and international legal regulation of human germline modification is timely, sharply directed and extremely well-focused...I found it an invaluable read."
Edwin Cameron, Co-Chair, WHO expert advisory committee exploring the governance of human genome editing

"A difficult but unavoidable topic...I very much appreciate this extremely valuable and pioneering contribution to the field."
Mikel Mancisidor de la Fuente, UN Committee on Economic, Social and Cultural Rights

"Brilliant. A tour de force through the regulation of human germline genome editing...Any scientist editing the genome of human cells should keep a copy in the lab."
Shoukhrat Mitalipov, Oregon Health & Science University

A companion website: freedomofresearch.org/ggel

Edition details

• Publisher: Cambridge University Press
• Publication date: 2020
• Language: English
• ISBN 10: 1108499872
• ISBN 13: 9781108499873
• Binding: Hardcover
• Edition number: 1
• Number of pages: 324
• Editor: Boggio Andrea, Romano Cesare P. R., Almqvist Jessica