A mother writes about her journey through grief after discovering that her only child was diagnosed with a rare, terminal degenerative disorder at nine months and how she made sense of her situation studying the works of great literature, philosophy and theology. (biography & autobiography). Simultaneous.
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An Amazon Best Book of the Month, March 2013: When her first child Ronan is diagnosed with Tay-Sachs disease, a rare terminal and degenerative illness, Emily Rapp is forced to meditate on one of life's cruelest questions: what does it mean for a parent to outlive her child? Rapp can't help but dwell on all the things that her son will never do--the full life that wasn't robbed from Ronan so much as it was never given. Still Point of the Turning World is brave and magnificently written. Though there are moments of levity, in some ways, it can be hard to recommend Still Point because Rapp's story is so overwhelmingly sad. ("Here," you might say, "why don't you read this and bawl your eyes out?") But this is a book that's honest and thoughtful, and we find that, like Rapp herself, enduring such heartbreak imbues us with a new sense of wisdom and courage. --Kevin Nguyen
Emily Rapp, the recipient of a Rona Jaffe Writers’ Award, is currently professor of creative writing and literature at the Santa Fe University of Art and Design and a faculty member in the University of California-Riverside MFA program. She lives in Santa Fe, New Mexico.
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