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Synopsis
Jenifer Estess is a woman on the verge: She's about to launch her own company; she's looking buff and dating vigorously; she's driving in the fast lane -- with the top down. At the age of thirty-five, Jenifer dreams of falling in love and starting a family. Then she notices muscle twitches in her legs. Walking down a city block feels exhausting. At first, doctors write off Jenifer's symptoms to stress, but she is quickly diagnosed with ALS, a fatal brain disease that is absolutely untreatable. "Max out your credit cards and see Paris," suggests one doctor. Instead of preparing to die, Jenifer gets busy. She dreams deeper, works harder, and loves endlessly. For Jenifer, being fatally ill is not about letting go. It's about holding on and reaching -- for family, friends, goals.Jenifer's girlhood pact with her sisters Valerie and Meredith -- nothing will ever break us apart -- guides them as Jenifer faces down one of the most devastating illnesses known to humankind. That same endur
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About the Author
Jenifer Estess was the CEO and founder of Project A.L.S. She lived in New York City, where she spent her best times with Jake, Willis, Jane, James, Kate, and the rest of her family.
From Publishers Weekly
By the time 40-year-old Jenifer Estess died of ALS (Lou Gehrig's disease) last December, she and her sisters had founded an organization-Project A.L.S.-to find a cure for this fatal neuromuscular disease. This fast-paced, witty book, written with one of her sisters, is both a memoir of Jenifer's six-year struggle with the disease and a chronicle of Project A.L.S.'s birth and work. Unfortunately, the beauty of the writing and the story is compromised by a too-casual structure; even simple chapter titles could have remedied the book's scattered feeling. This haze appears elsewhere, too: for instance, after deciding to found Project A.L.S, the sisters recruited theater colleagues, including Ben Stiller, to help, but they don't explain how Jenifer had made those contacts in the first place (the necessary details of her profession as a theater producer aren't revealed until the book's second half). Flashbacks to Jenifer's romantic history and to her mother's love life are well written and funny, but sometimes feel inappropriate to the story. The book does engage, however, when it details Jenifer's relationship with her supportive friend Reed, who liberates-and loves-the wheelchair-bound Jenifer. But later, as Jenifer describes her inability to speak or write, readers may wonder how she managed to create this part of the book. The final chapter, though, is beautiful: in a clever, poignant twist, Jenifer continues to narrate her death and its aftermath, bringing the sisters' love and closeness full circle as readers wonder where Jenifer ends and Valerie begins.
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- PublisherAtria Books
- Publication date2004
- ISBN 10 1422362086
- ISBN 13 9781422362082
- BindingHardcover
- Number of pages209
- Rating
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