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Parenting Your Child with Autism: Practical Solutions, Strategies, and Advice for Helping Your Family - Softcover

 
9781608821907: Parenting Your Child with Autism: Practical Solutions, Strategies, and Advice for Helping Your Family

Synopsis

Amid a bewildering range of treatments that promise to alleviate or even cure autism, even the leading researchers can’t predict what will work for your child. As a parent, you are in a unique position to become the practical expert on your child’s needs and strengths. Parenting Your Child with Autism will equip you with family-tested and science-based approaches for meeting the challenges ahead.

You’ll learn how to get a diagnosis and navigate the health care and educational systems, make sense of your child’s treatment options, and tap into expert opinions and your own observations to find a treatment program that works. Perhaps most importantly, you will learn how to become your child’s best advocate, and build a better life for your child.

This book focuses on the processes and decisions parents of children with autism face every day. To help you build an everyday life that works for your child with autism and other family members, this book shares suggestions that range from practical and educational to philosophical, closing with some personal and professional advice for your journey ahead.

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About the Author

Anjali Sastry, PhD, is senior lecturer in system dynamics at the Massachusetts Institute of Technology Sloan School of Management and lecturer in the Department of Global Health and Social Medicine at Harvard Medical School. She investigates global health delivery and management, focusing on systems thinking and practical business-based approaches for increasing medical and prevention services in low-resource settings via numerous field studies in sub-Saharan Africa and South Asia. She serves on the boards of Management Sciences for Health and the Learning Project Elementary School. She, her husband, and their two sons, both of whom have been diagnosed on the autism spectrum, live in Brookline, MA.

Blaise Aguirre, MD, is an expert in child psychiatry including psychotherapy and psychopharmacology. He has worked extensively with children and their families and is an author and speaker on various aspects of mood, personality and development in children and adolescents. He is medical director of 3East at Harvard-affiliated McLean Hospital, a residential dialectical behavior therapy (DBT) program for young women exhibiting self-endangering behaviors and borderline personality traits. He has been a staff psychiatrist at McLean Hospital since 2000. He is an assistant professor of psychiatry at Harvard Medical School and lives in Lexington, MA, with his wife and their four children.

Review

“This book is highly readable and makes the complexity of autism highly accessible to parents, who have an urgent need to know how to help their child. The authors bring to the book their invaluable mix of first-hand and professional experience.”
—Simon Baron-Cohen, FBA, professor of developmental psychopathology at Cambridge University and director of its Autism Research Centre



“A refreshing, parent-centered approach that empowers parents to go with their gut feeling while also providing realistic advice that promotes critical thinking. This book is an inclusive guidebook with practical notes for parents at all stages of the autism diagnosis.”
—Lisa Borges, executive director of the Doug Flutie, Jr. Foundation for Autism, Inc.



“This wonderful book will bring comfort and practical help to many families as they search for creative ways to relieve their children’s distress, develop new skills, and find areas of joy. The biggest gift that Anjali M. Sastry and Blaise Aguirre offer is that their shared wisdom will spare some parents from the painful and slow trial-and-error process of sifting through the sea of options they encounter on the Internet. Their book is deeply respectful of every parent as the true expert on their own unique child’s strengths, interests, and challenges. It is also uniquely thoughtful about mindfulness and other ways that parents can sustain themselves along the journey. This is an important addition to the family literature on autism spectrum disorders.”
—Joseph Gold, MD, chief medical officer at McLean Hospital



Parenting Your Child with Autism is a guide to managing your life and family when you have a child on the autistic spectrum. This is not a book of answers, but a book of methods and processes. Sastry and Aguirre teach you how to find the help you need, how to manage all the meetings with doctors and educators, and how to evaluate all the conflicting opinions and recommendations. Most importantly, they teach you how to do the best for your child.”
—Brian G. R. Hughes, parent, entrepreneur, and university trustee



“This book is a user-friendly, insightful, and practical guide for parents of children with autism. It empowers parents to take a leading role as an expert in their child’s care and to bring their invaluable expertise as the primary care providers to the table. I highly recommend this book and believe that it will be of enormous benefit to children with autism and their families.”
—Roya Ostovar, PhD, author of The Ultimate Guide to Sensory Processing Disorder



“As a lay person who has both worked with adolescents for over thirty-five years and is an aunt to a nephew with Asperger’s syndrome, I found this book captivating. The simple (without being simplistic) explanations of the autism spectrum and the practical guides to coping left me feeling empowered. The mystery of autism was swept away and, in its place, I was left with a feeling of hope. Although there is currently no cure for autism, Sastry and Aguirre are encouraging with their advice. They assure caregivers of children with ASD that they can significantly improve the quality of life of those affected by autism. A very practical and optimistic read.”
—Linda Schuyler, cocreator and executive producer of the award-winning Degrassi television franchise



“A parent who has been there and a compassionate doctor combine to create a winning combination of practical assistance and compassion. I recommend this book to any parent who wants to learn more about taking care of their child with autism—and themselves.”
—Ken Duckworth, MD, medical director at National Alliance on Mental Illness and assistant clinical professor at Harvard Medical School



“Finally, a book for parents of children newly diagnosed with autism that’s accurate and practical without being intimidating or alarmist. This how-to guide will help parents focus their energy and efforts so that their child benefits. I wish I’d had this introduction to autism when my daughter was first diagnosed.”
—Alison Singer, president of the Autism Science Foundation



“Feeling overwhelmed and confused about what to do to help your autistic child? Help awaits you with this book, an authoritative yet deeply empathetic and highly practical guide to navigating the challenging terrain of autism, from getting a diagnosis to choosing the right therapy. I wish my wife and I had had such an enormously useful primer when my son was diagnosed with autism in the late 1990s. It would have been our bible, like What to Expect When You’re Expecting is for pregnancy. The authors have done parents of children with autism a huge service with this book, which, above all, offers a truly hopeful way forward.”
—Peter Tyson, father of a fifteen-year-old autistic boy



“As indicated by its subtitle, this book is not a how-to manual, nor is it a book that advocates one view or another regarding this very complex disorder known as autism. The authors have presented a guide for parents, families, and caregivers with regard to understanding what is and is not known about the disorder, evaluating the strengths and weaknesses of the child, establishing medical and educational teams to best support the needs of the child and the family, becoming an effective advocate for the child, handling potential family stresses, and negotiating a multiplicity of interventions and treatment options. This book is well-researched and exceptionally well-balanced in its approach and is a thoughtful, common-sense guide to setting reasonable expectations and successfully negotiating the world of the autistic child.”
—Margaret L. Bauman, MD, associate professor of neurology at the Harvard Medical School, director of the Autism Research Foundation and the Autism Research Consortium, and founding director of the Lurie Center for Autism

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  • PublisherNew Harbinger Publications
  • Publication date2012
  • ISBN 10 1608821900
  • ISBN 13 9781608821907
  • BindingPaperback
  • Edition number1
  • Number of pages216
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