Items related to Babyface: A Story of Heart and Bones
Synopsis
The mother of a child born with Apert syndrome recounts her life raising a child with this disfiguring syndrome.
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From the Publisher
A Review...
"Babyface is yet another book that is not ostensibly written about hope. But it also is about promising new treatments-in this case, Apert syndrome, a rare genetic, craniofacial condition.
There is much more than that here, however, as evidenced in this commentary on McDermott's description of her marriage and how it was buffeted by the challenge of dealing with a child who has a genetic disease.
'No one completely understands the workings of another person's soul,' writes McDermott, a science journalist. 'But Ted and I would never give up trying, and this tenacity helped us preserve the contagious madness of love at a time when other drifted apart.'
McDermott's literary memoir recounts the harrowing succession of surgeries her son, Nathaniel, underwent to treat his condition.
Apert's often causes a malformation of the skull and deformities of the hands and feet.
Hers is 'a love story brought together through difficult circumstances,' said McDermott, now a science teacher in Boston. 'I hope this book resonates with and offers hope to anyone who struggles with some unexpected turn in life.'" --Grand Rapids Press (10/19/00)
"'In the hourless depth of the night... I grieved for the dreambaby who had died and loved the one who had been born.' In Babyface: A Story of Heart and Bones Jeanne McDermott tells of her life with the life of her second son, Nathaniel, born at Boston's Beth Israel Hospital with Apert syndrome, a rare craniofacial condition. McDermott, who has written for Smithsonian, Horticulture, and The Wall Street Journal, writes with scientific metaphor in describing aspects surrounding his life: 'lost in seaweed of tubes' and 'mission control equipment.'
The book discusses fundamental beliefs about difference and beauty; it also provides insight and inspiration to families." --ForeWord Magazine
About the Author
Jeanne McDermott, a science journalist and author of The Killing Winds: The Menace of Biological Warfare, has written for Smithsonian, Popular Science, Horticulture, Wall Street Journal, and other publications. She was a Knight Fellow in the Public Understanding of Science and Technology at MIT. Currently a science teacher at Shady Hill School in Cambridge, Massachusetts, she and her family live in the greater Boston area.
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- PublisherWoodbine House
- Publication date2000
- ISBN 10 1890627151
- ISBN 13 9781890627157
- BindingHardcover
- Edition number1
- Number of pages261
- Rating
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Babyface: a Story of Heart and Bones
Published by
Woodbine House, Bethesda, Md., 2000
ISBN 10: 1890627151
ISBN 13: 9781890627157
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First Edition
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Hardcover. Condition: Fine. Dust Jacket Condition: Fine. First Edition. A mother tells her family's experience with a son born with severe disabilities. Probes medical care, concepts of perfection and beauty, and family challenge. Book and Jacket are flawless except for two words stamps on top page edges. With publisher's press release laid in. ALL BOOK JACKETS ARE PROTECTED IN PLASTIC COVERS. Seller Inventory # 000824
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Babyface - A Story of Heart and Bones
Published by
Woodbine House, Inc., 2000
ISBN 10: 1890627151
ISBN 13: 9781890627157
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Hardcover. Condition: As New. Dust Jacket Condition: Fine. 1st Edition. 261 pages including acknowledgments, information about craniofacial conditions, and recent research on Apert Syndrome. The dust jacket has minor shelf wear but is in fine condition, The book itself is in as new condition. This is the inspring story of a family living with Apert Syndrome. Seller Inventory # 000726
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BABYFACE: A Story of Heart and Bones
Published by
Woodbine House, Bethesda, Maryland, U.S.A., 2000
ISBN 10: 1890627151
ISBN 13: 9781890627157
Used
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First Edition
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Hardcover. Condition: USED_FINE. Dust Jacket Condition: Fine. 1st Edition. A memoir that offers an intimate look at how her ideas of perfection and wholeness were turned upside down. It explores her circumstances on many levels: Her own and her family's emotional survival; genetic and ethical questions regarding disability; beliefs about beauty; and what it means to be human. Fine, first edition, first printing, in fine, mylar-protected dust jacket. {Not remainder-marked or price-clipped} BIOS1. Seller Inventory # 019426
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Babyface: A Story of Heart and Bones
Published by
Woodbine House, Bethesda, MD, 2000
ISBN 10: 1890627151
ISBN 13: 9781890627157
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Hardcover. Condition: Like New. This copy is NEW; the text is clear, bright, and unmarked; binding is tight; slight shelfwear top and bottom edges. Apparent first edition (unstated but earliest appearance of the book). STATED FIRST PRINTING. The jacket is also new: absolutely intact in all ways, including perfect color and design; slight rubbing. We have a five star rating because of our fulfilment success and because our descriptions are accurate. All shipments within U.S. sent with Tracking. On foreign sales, because of the heavy weight of this book, we have to charge extra for shipping: however, we will only charge the difference between our regular shipping rate and the extra charge that the U.S.Post Office asks to ship the book. We guarantee: NO NASTY SURPRISES. Seller Inventory # 009380
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