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Paperback or Softback. Condition: New. Rare Threads: A Life with Prader-Willi Syndrome 0.96. Book. Seller Inventory # BBS-9781923087170
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Paperback. Condition: new. Paperback. In Rare Threads: A Life with Prader-Willi Syndrome, Sebastiaan Van Nuissenburg shares the poignant journey of raising a child with two rare genetic conditions. From the overwhelming joy of birth to the stark realities of being the parent of the only child in the world to be born with Prader-Willi Syndrome UPD & Chromosome 16 microdeletion, Sebastiaan offers a raw and honest portrayal of the mental challenges, sacrifices, and triumphs encountered along the way.From infancy to the pivotal age of 10, readers are immersed in Sebastiaans world as a parent, exploring effective strategies, pitfalls to avoid, and thequest to foster independence in their child. Seamlessly blending candid reflections with whimsical anecdotes, Rare Threads celebrates every childsindividuality and the unwavering love of extraordinary parents navigating uncharted territories.Join Sebastiaan on this extraordinary journey filled with love, tears, laughter, and understanding as he unravels the rare threads that bind hisfamily together, offering hope and support to other families facing similar challenges. Rare Threads: A Life With Prader-Willi Syndrome Sebastiaan Van Nuissenburg A Life with Prader-Willi Syndrome, Sebastiaan Van Nuissenburg shares the poignant journey of raising a child with two rare genetic conditions. Shipping may be from multiple locations in the US or from the UK, depending on stock availability. Seller Inventory # 9781923087170
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Seller: PBShop.store US, Wood Dale, IL, U.S.A.
PAP. Condition: New. New Book. Shipped from UK. THIS BOOK IS PRINTED ON DEMAND. Established seller since 2000. Seller Inventory # L0-9781923087170
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Seller: PBShop.store UK, Fairford, GLOS, United Kingdom
PAP. Condition: New. New Book. Delivered from our UK warehouse in 4 to 14 business days. THIS BOOK IS PRINTED ON DEMAND. Established seller since 2000. Seller Inventory # L0-9781923087170
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Seller: Russell Books, Victoria, BC, Canada
paperback. Condition: New. Special order direct from the distributor. Seller Inventory # ING9781923087170
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Seller: GreatBookPricesUK, Woodford Green, United Kingdom
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Seller: GreatBookPricesUK, Woodford Green, United Kingdom
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