Beyond Autonomy: Limits and Alternatives to Informed Consent in Research Ethics and Law

David G. Kirchhoffer; Bernadette J. Richards (University of Adelaide)

ISBN 10: 1108491901 / ISBN 13: 9781108491907

Published by Cambridge University Press, 2019

About this Item

This book is for anyone interested in research involving humans, such as researchers, potential participants, ethics committees and institutional review boards, university educators and students, and policy makers. It analyses the limitations of respect for autonomy that lead to under-research of vulnerable groups, and explores new ethical approaches.

Seller Inventory # c10066

Bibliographic Details

• Title: Beyond Autonomy: Limits and Alternatives to Informed Consent in Research Ethics and Law
• Publisher: Cambridge University Press
• Publication Date: 2019
• Language: English
• ISBN 10: 1108491901
• ISBN 13: 9781108491907
• Binding: Hardcover
• Condition: Brand New

About this title

Synopsis

Respect for autonomy has become a fundamental principle in human research ethics. Nonetheless, this principle and the associated process of obtaining informed consent do have limitations. This can lead to some groups, many of them vulnerable, being left understudied. This book considers these limitations and contributes through legal and philosophical analyses to the search for viable approaches to human research ethics. It explores the limitations of respect for autonomy and informed consent both in law and through the examination of cases where autonomy is lacking (infants), diminished (addicts), and compromised (low socio-economic status). It examines alternative and complementary concepts to overcome the limits of respect for autonomy, including beneficence, dignity, virtue, solidarity, non-exploitation, vulnerability and self-ownership. It takes seriously the importance of human relationality and community in qualifying, tempering and complementing autonomy to achieve the ultimate end of human research - the good of humankind.

About the Authors

David G. Kirchhoffer is Director of the Queensland Bioethics Centre at the Australian Catholic University's Brisbane Campus. He holds a Ph.D. from the Katholieke Universiteit Leuven and an M.Phil. from St Augustine College of South Africa. He is the author of Human Dignity in Contemporary Ethics (2013).

Bernadette J. Richards is Associate Professor of Law and Director of the Research Unit for the Study of Society, Ethics and the Law at the University of Adelaide, and a member of the Australian Health Ethics Committee. She is a chief investigator of a current NHMRC-funded Partnership Grant exploring advance care planning and is currently writing a book entitled Technology, Healthcare and the Law: An evolving relationship (forthcoming).