Blossoming Into Disability Culture Following Traumatic Brain Injury: The Lotus Arising (After Brain Injury: Survivor Stories)

This book tells the author’s story of her ten-year journey of recovery and identity transformation from Traumatic Brain Injury (TBI). Dr. Dee is a survivor who regained the ability to articulate what many TBI survivors cannot, and this powerful account, provided in real-time, portrays the many seemingly unrelatable symptoms of brain injury and subsequent post-traumatic stress disorder (PTSD). Dr. Dee portrays how events pushed her beyond her limits and resulted in life-altering learning experiences, revealing a process of first figuring out how to live, then making meaning of her struggle.

When half-way through her PhD program, Dr. Dee was crashed into by a car travelling at 65 miles per hour. She suffered a TBI. She lost her ability to read and write. She had a severe speech impediment and significantly impaired memory. Her journey of recovery, described in the book as her trek, spans four significant periods. The road begins with the loss of most of herself. Diagnosis and evolving symptoms show her broken pathway. The author goes through a rocky road of changes in her relationships and reidentification of herself as she finds her life coach, re-learns to read and write, and deals with mental health issues that felt like the end of her recovery. The final trek reveals hope and posttraumatic growth (PTG) and showcases the value of Disability Culture as a source of pride.

This story is for fellow TBI survivors, their caretakers, families and friends, and professionals in the neurorehabilitation field. It brings light to the daunting changes after TBI and give hope for all who tread on this challenging path.

Dee Phyllis Genetti, PhD, LMHC, CTS is a psychologist with clinical expertise in trauma recovery. She is a civil rights advocate for equal rights/access and human dignity for persons with disabilities, a motivational speaker, published author, producer and host of Access Abilities with Dr. Dee and Marquis, and a member of the American Psychological Association.