Dementia Activist: Fighting for Our Rights

Helga Rohra

ISBN 10: 1785920715 / ISBN 13: 9781785920714

Published by Jessica Kingsley Publishers, 2016

About this Item

Helga Rohra turns dementia stereotypes on their heads with this candid memoir. Speaking about her diagnosis, day-to-day life and experience of advocacy, she proves that a dementia diagnosis doesn't mean you have to give up on life. With helpful advice and practical tips, this book is a testament to living well with dementia. Num Pages: 152 pages, illustrations. BIC Classification: JKSG; MJND; VFJB. Category: (G) General (US: Trade); (P) Professional & Vocational; (U) Tertiary Education (US: College). Dimension: 152 x 196 x 35. Weight in Grams: 152. . 2016. Translation. Paperback. . . . . Books ship from the US and Ireland.

Seller Inventory # V9781785920714

Bibliographic Details

• Title: Dementia Activist: Fighting for Our Rights
• Publisher: Jessica Kingsley Publishers
• Publication Date: 2016
• Language: English
• ISBN 10: 1785920715
• ISBN 13: 9781785920714
• Binding: Soft cover
• Condition: New

About this title

Synopsis

What's happening to me?'

Successful translator and linguist Helga Rohra was understandably good with words - that is, until she found herself getting in a muddle when she spoke. She started to forget the way home, even though she could remember her address. Her confusing symptoms increased and Helga was diagnosed with dementia at age 50 - but she hasn't let herself be labelled with the usual stereotypes.

With entertaining vim Helga shows that her life is still as abundant and self-determined as ever, dismantling the negative stereotypes that often surround a dementia diagnosis. She speaks frankly and with humour about her diagnosis and life with young onset Lewy Body Dementia. She explains the changes in her everyday life and the challenges she faces, and shares practical tips that prove it is possible to live well with dementia. Helga also talks about her activism work, which has made hers one of the key voices internationally in dementia advocacy.

About the Author

Helga Rohra worked as a freelance translator specialising in medical and scientific translations. Even before her diagnosis of Lewy Body dementia, she advocated for people with disabilities and dementia. She is Chair of the EWGPWD (European Working Group of People with Dementia) under the umbrella of Alzheimer Europe, Vice Chair of DAI (Dementia Alliance International), sits on the board of Alzheimer Europe, and is also the Chair of Trotzdemenz e.V. (a German organisation run by people with and without dementia to raise awareness of the condition). Helga lives with her son in Munich, Germany.