Ethics on Trial : Protecting Humans in Canada's Broken Research System
Parente, Janice E.; McDonald, Michael (FRW)
Language: English
Published by Dundurn Press, 2025
- Softcover
- New
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- Title
- Ethics on Trial : Protecting Humans in Canada's Broken Research System
- Author
- Parente, Janice E.; McDonald, Michael (FRW)
- Publisher
- Dundurn Press
- Publication year
- 2025
- Condition
- New
- Binding
- Soft cover
- Language
- English
- ISBN 10
- 1459755979
- ISBN 13
- 9781459755970
The governance framework for human research in Canada is dangerously flawed and has the potential to lead to harm and suffering.
Canadian researchers and research companies have been allowed to flirt with informed consent; choose research ethics boards with less restrictive oversight; and violate the rights, safety, and welfare of Canadians ― including those in situations of vulnerability ― under the indifferent eye of a federal government unwilling to fix the system.
In Ethics on Trial, Janice E. Parente ― who has led the fight for oversight and accountability of human research in Canada for three decades ― shows readers the devastating consequences of the current flawed approach. She proposes a simple solution that embraces a good and ethical system of governance ― a system that Canadians should insist on and Canada’s lawmakers and research funders should wholeheartedly adopt.
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About the Author
Janice E. Parente has, for over thirty years, been one of Canada’s leading advocates for the rights, safety, and welfare of human research participants. Janice holds a degree in biochemistry from McMaster University and a PhD in medicine from the University of Alberta. Janice lives in the Laurentian region of Quebec.
Michael McDonald is the founding Director of the W Maurice Young Centre for Applied Ethics (CAE), University of British Columbia and now Professor Emeritus. Over his 50 year career he has conducted research in a variety of areas in ethics including both theoretical and applied issues. For the past two decades McDonald has focussed on the protection of research participants with a major emphasis on the governance of this area. His most recent research collaborations have been centred on how the experiences of research participants are understood by researchers and research ethics boards. McDonald continues to advocate evidence-based participant protection.
"About the title" may belong to another edition of this title.
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