Health Matters for People with Developmental Disabilities: Creating a Sustainable Health Promotion Program

Adults with developmental disabilities are at significant risk for health problems. Effective health promotion can improve outcomes—and that's why adult day and residential agencies, schools, and other organizations need this invaluable program development guide. An urgent call to action and a start-to-finish framework for health promotion, this book shows administrators and service providers how to increase supports for health education, exercise and nutrition by implementing their own successful program.

With practical guidance on every stage of program development, readers will discover how to

• effectively communicate the key "selling points" of a health promotion program, from improved quality of life to reduced cost of health care
• win the support of everyone involved, from senior management to direct support staff
• manage practical aspects like budgeting, gathering resources, and recruiting staff
• use Universal Design to develop a program that welcomes people with intellectual, developmental, and physical disabilities
• motivate program participants with creative activities and strategies
• ensure lasting improvements in health behaviors by setting up environmental and organizational supports
• evaluate the program's outcomes and identify areas for improvement

To help them implement their own health promotion program, readers will get practical planning tools:

• a "getting started" checklist
• a sample Program Timeline and budget
• lists of Internet and community resources
• and assessment tools for determining their participants' needs, their current resources, and the success of their program.

The ideal complement to the proven Health Matters health education curriculum, this highly accessible program development guide will help service providers ensure better health—and better lives—for adults with a wide range of disabilities.

Dr. Marks is also Associate Director for Research in the Rehabilitation Research and Training Center on Aging with Developmental Disabilities (RRTCADD) and President of the National Organization of Nurses with Disabilities. She directs research activities related to health promotion, health advocacy, primary health care, and occupational health and safety for persons with intellectual and developmental disabilities. Dr. Marks has developed and implemented community-based surveys related to health and safety for people with disabilities and has written publications and presented papers in the area of disability, health, and community engagement in the United States and internationally. She has coedited a special issue for Nursing Clinics of North America titled Promoting Health Across the Lifespan for Persons with Developmental Disabilities and a feasibility study report, Advancing Nursing Education at Bel-Air Sanatorium and Hospital in Panchgani, Maharashtra, India, through The Global Health Leadership Office/ WHO Collaborating Center at the University of Illinois at Chicago.

Ms. Sisirak’s research interests focus on nutrition, health literacy, and health promotion for persons with intellectual and developmental disabilities. She coordinates several health promotion projects in the Rehabilitation Research and Training Center on Aging with Developmental Disabilities and has written publications and has presented papers in the area of disability in the DHD at UIC. Her research interests consist of nutrition, health literacy, and health promotion for persons with intellectual and developmental disabilities. She coordinates several health promotion projects in the RRTCADD and has written publications and presented papers in the areas of disability, health, and nutrition. Ms. Sisirak received her bachelor of science degree in dietetics at Southern Illinois University and her master of public health at UIC. Currently, she is a doctoral candidate in community health sciences in the School of Public Health at the University of Illinois at Chicago.

Dr. Heller also directs the Rehabilitation Research and Training Center on Aging with Developmental Disabilities and projects on support interventions for individuals with disabilities, including the Special Olympics Research Collaborating Center. Dr. Heller has written more than 150 publications and presented more than 200 papers at major conferences on family support interventions and policies, self-determination, health promotion, and aging of people with developmental disabilities. She has coedited two books (Health of Women with Intellectual Disabilities, Blackwell Publishing, 2002; Older Adults with Developmental Disabilities: Optimizing Choice and Change, Paul H. Brookes Publishing Co., 1993) and edited special issues of Technology and Disability, American Journal on Mental Retardation, Journal of Policy and Practice in Intellectual Disabilities, and Family Relations. She is the president of the board of the Association of University Centers on Disabilities. In 2005 she was a delegate to the White House Conference on Aging. As a cofounder of the national Sibling Leadership Network, she is a member of its steering committee. Her awards include the 2009 Autism Ally for Public Policy Award of The Arc/The Autism Program of Illinois; the 2008 Lifetime Research Achievement Award, International Association for the Scientific Study of Intellectual Disabilities, Special Interest Group on Aging and Intellectual Disabilities; and the 2009 Community Partner Award of Community Support Services.