Losing Kay: Living and Dying with Progressive Supranuclear Palsy

Kay Simmons died five months after she and the author celebrated their fiftieth wedding anniversary. The last five years of their life together were spent in the shadow of Progressive Supranuclear Palsy, a rare degenerative brain disease. This book chronicles their journey together with the disease from earliest symptoms to diagnosis to life with the disease to loss and grief. It should be required reading for anyone confronting the disease, medical professionals treating but not living with the disease, anyone caring for a loved one who is chronically, terminally ill, or anyone suffering the pain of losing a loved one.