Diversity plays an important role in how people experience illness and healthcare as patients. Listening carefully to stories of how race, class, age, gender, sexuality, and disability can affect patient experience can be revealing and provide much needed change to health communication in the patienthood narrative. This book is a collection of vibrant and engaging essays by scholars of narrative methods in health communication. Each chapter takes readers into the fascinating world of patients who use stories from their personal lives to challenge us to rethink, reimagine, and reformulate what health communication means in practice.
Each section of the book focuses on an important aspect of the theory and practice of the patienthood narrative. Part one explores the important ways that telling and sharing patient’s stories can lead to learning, empowerment, and advocacy. Part two explores several key forms of diversity and how they affect patienthood. Part three illustrates how personal, relational, and cultural aspects of identity intersect to shape the patient experience.
After spending her childhood coming up with new episodes to her favorite sitcoms instead of sleeping, Laura Brown decided to try her hand at writing and never looked back. A hopeless romantic, she’s been drawn to love stories since an early age. She lives in Massachusetts with her family. Laura’s been hard of hearing her entire life but didn’t start learning ASL until college, when her disability morphed from an inconvenience to a positive part of her identity. At home the closed captioning is always on, lights flash with the doorbell, and hearing aids are sometimes optional.
Andrew Spieldenner is Professor of Communication at California State University - San Marcos, USA, with 30 years of experience in the HIV movement. He is a community-engaged researcher who works with gay, bi, queer, and trans communities in over 30 countries. Openly living with HIV, Dr. Spieldenner currently leads the non-profit organization MPact Global Action for Gay Rights & Health.