The Right to Know and the Right Not to Know: Genetic Privacy and Responsibility

Chadwick, Ruth

ISBN 10: 110742979X / ISBN 13: 9781107429796

Published by Cambridge University Press, 2014

About this Item

This book re-examines privacy in a world where genome sequencing is cheap, databases can be large, and access rights are hidden. Editor(s): Chadwick, Professor Ruth; Levitt, Mairi; Shickle, Darren. Series: Cambridge Bioethics and Law. Num Pages: 228 pages, 1 b/w illus. BIC Classification: LNTM; MBDC; PSAD. Category: (P) Professional & Vocational; (U) Tertiary Education (US: College). Dimension: 226 x 155 x 13. Weight in Grams: 346. . 2014. 2nd Edition. Paperback. . . . . Books ship from the US and Ireland.

Seller Inventory # V9781107429796

Bibliographic Details

• Title: The Right to Know and the Right Not to Know: Genetic Privacy and Responsibility
• Publisher: Cambridge University Press
• Publication Date: 2014
• Language: English
• ISBN 10: 110742979X
• ISBN 13: 9781107429796
• Binding: Soft cover
• Edition: 2nd Edition
• Condition: New

About this title

Synopsis

The privacy concerns discussed in the 1990s in relation to the New Genetics failed to anticipate the relevant issues for individuals, families, geneticists and society. Consumers, for example, can now buy their personal genetic information and share it online. The challenges facing genetic privacy have evolved as new biotechnologies have developed, and personal privacy is increasingly challenged by the irrepressible flow of electronic data between the personal and public spheres and by surveillance for terrorism and security risks. This book considers the right to know and the right not to know about your own and others' genomes. It discusses new privacy concerns and developments in ethical thinking, with the greater emphasis on solidarity and equity. The multidisciplinary approach covers current topics such as biobanks and forensic databases, DIY testing, group rights and accountability, the food we eat and the role of the press and the new digital media.

About the Authors

Ruth Chadwick is Professor of Bioethics at Manchester University and chair of the Human Genome Organisation (HUGO) Committee on Ethics Law and Society. She directed the ESRC Centre for Economic and Social Aspects of Genomics (Cesagen) from 2002 to 2013.

Mairi Levitt is a senior lecturer in the Department of Politics, Philosophy and Religion at Lancaster University, where she works in empirical bioethics and researches ethical and social issues in genetics.

Darren Shickle is Professor of Public Health at the University of Leeds, where his research interests include public health ethics, public health genetics, ophthalmic public health and HIV and sexual health.