Paperback. A frank analysis of the medical and emotional inequalities that pervade the healthcare process for critically ill children Families who have a child with a life-threatening illness face a daunting road ahead of them, one that not only upends their everyday lives, but also strikes at the very heart of parenthood. In "Save My Kid," Amanda M. Gengler traces the emotional difficulties these families navigate as they confront a fundamentally unequal healthcare system in the United States. Gengler reveals the unrecognized, everyday inequalities tangled up in the process of seeking medical care, showing how different families manage their children's critical illnesses. She also uncovers the role that emotional goalsdeeply rooted in the culture of illness and medicineplay in medical decision-making, healthcare interactions, and the end of children's lives. A deeply compassionate read, "Save My Kid" is an inside look at inequality in healthcare among those with the most at stake. "'Save My Kid' is a deep exploration of the healthcare system and how it affects the families of critically ill children"-- Shipping may be from multiple locations in the US or from the UK, depending on stock availability.

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Bibliographic Details

Title: "Save My Kid" (Paperback)
Publisher: New York University Press, New York
Publication Date: 2020
Language: English
ISBN 10: 1479864625
ISBN 13: 9781479864621
Binding: Paperback
Condition: new

About this title

Synopsis

A frank analysis of the medical and emotional inequalities that pervade the healthcare process for critically ill children

Families who have a child with a life-threatening illness face a daunting road ahead of them, one that not only upends their everyday lives, but also strikes at the very heart of parenthood. In “Save My Kid,” Amanda M. Gengler traces the emotional difficulties these families navigate as they confront a fundamentally unequal healthcare system in the United States.

Gengler reveals the unrecognized, everyday inequalities tangled up in the process of seeking medical care, showing how different families manage their children’s critical illnesses. She also uncovers the role that emotional goals―deeply rooted in the culture of illness and medicine―play in medical decision-making, healthcare interactions, and the end of children’s lives.

A deeply compassionate read, “Save My Kid” is an inside look at inequality in healthcare among those with the most at stake.

About the Author

Amanda M. Gengler is Assistant Professor of Sociology at Wake Forest University.

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