What I Would Tell You ~ One Mother's Adventure with Medical Fragility. This item is unavailable.What I Would Tell You ~ One Mother's Adventure with Medical Fragility

When Julie and her husband, Tim, were preparing for the birth of their first child, they had no idea that their lives were about to change on a much greater scale than what they had anticipated. Their daughter, Meredith, unexpectedly suffered complications at birth resulting in a significant brain injury. She was diagnosed with life-limiting cerebral palsy and Julie and Tim began walking this road of unique parenting. This book is a collection of the wisdom Julie has gained over the first fourteen years of Meredith's life and is a beacon of hope for those just starting this adventure. Her words bring guidance not only to weary parents raising a child with extra needs and medical fragility but also to the professionals who care for them. Her unique insight and perspective will benefit anyone who has had an unexpected detour in their life.

Julie Keon's professional career began in the early 90s in the field of social work. She always had a strong desire to work with people as they navigated through life and its various challenges. Eventually, certifying as a birth and postpartum doula (DONA International), Julie founded Mother Nurture Childbirth Services in 1998, assisting couples through the childbirth experience and the early weeks at home with a new baby. Seeing the need for specific support, she created a workshop for women who had experienced difficult or traumatic births. In the fall of 2015, Julie retired from all birth related work. She welcomed the opportunity to become a licensed marriage officiant for the province of Ontario in 2012. To expand her services, Julie graduated as a certified Life-Cycle Celebrant® in early 2013 from the Celebrant Foundation & Institute with a focus on funeral and end-of-life celebrations. She specializes in the creation and implementation of ceremonies to mark life s transitions from the start of life to the end of life and everything in between. The first edition of "What I Would Tell You~ One Mother's Adventure with Medical Fragility" found its way around the world inspiring parents, professionals and anyone who has ever experienced an unexpected detour in their lives. When the time came to print another run, Julie had more to share and chose to revise and expand this second edition. A graduate (April 2016) of the Beyond Yonder Virtual School for Community Deathcaring in Canada, Julie aims to educate and support her community in the reclamation of family-centred death care. In 2017, she created a unique, end-of-life preparation course (Ready or Not~ Preparing for the Inevitable) for members of the community. Her interests include psychology, health, travel, cooking, writing, and staying vibrant and resilient while holding on to a sense of humour. She shares her life in the Ottawa valley with her husband, Tim, and their daughter, Meredith