Giovanni Long

Hello my name is Giovanni Long, I live with Holt-Oram Syndrome. This syndrome affects one out of every hundred thousand live births. It affects the development of your hands and your heart. There is so little known about this syndrome most physicians never even heard of it. I feel as if it’s my goal in life to teach as many people about this syndrome as I can. I pray one day everyone will treat those who look different the same as everyone else.

Thank you for taking the the time read my story