When Down Syndrome and Autism Intersect: A Guide to DS-ASD for Parents and Professionals

While it's well known that the incidence of autism spectrum disorders (ASD) is skyrocketing in the general population, it's less well known that ASD is even more common in people with Down syndrome. When Down Syndrome and Autism Intersect is the first comprehensive guide to look at the dual diagnosis of Down Syndrome and Autism Spectrum Disorder (DS-ASD). Written by parents and professionals, the book discusses best practices for screening, treatment, education, and caretaking. This one-stop resource is for families whose child is already diagnosed, as well as parents who suspect their child has co-existing ASD. Professionals, too, will find information on how to distinguish DS-ASD from a diagnosis of just Down syndrome – for instance, what physical and medical issues belong to a Down syndrome-only diagnosis, and what mental and behavioral issues suggest that an ASD also exists. They will also find guidance to help them care for and provide services for children and adults with this dual diagnosis. The editors and chapter authors include seasoned parents, advocates, doctors, dentists, psychologists, behavior analysts, nurses, educators, and financial planners. They share their experiences and expertise on these topics: Diagnosis Emotional Adjustment & Getting Support Genetics Medical & Health Concerns What Autism Looks like in a Child with Down Syndrome When Autism is Suspected in Teens and Adults with DS Oral Health Behavioral Treatments for Sleep Problems Care Coordination Problem Behaviors Educational Programs Working with Minorities Life Planning Parents and professionals, who previously had to piece together information about DS-ASD from sources about each separate condition, can now rely on this groundbreaking book to understand and navigate the complexities and challenges of DS-ASD.

Margaret Froehlke, R.N. is the mother of four children, one of whom has DS-ASD. Froehlke worked as Executive Director of the Denver Adult Down Syndrome Clinic, and is now on staff with Adam's Camp. A Registered Licensed Nurse in Colorado, Margaret received her Bachelor of Science in Nursing (BSN) from Wayne State University. Robin Sattel Zaborek is also the mother of four children, including an adult son with Down syndrome and a daughter with DS-ASD. She is co-founder of the Down Syndrome-Autism Connection™, whose mission is to provide support and education to families and professionals affected by DS-ASD.